Just stay strong. It is not easy but it is for the best. Whatever they find or don't find you all need to know so you can move forward. My daughter had a hole in her heart and they wanted to stop her heart and restart it. We said no and luckily it grew over and she is normal now. Hopefully it is something stupid that can be rectified over time. Just remain positive and it will be fine.
Thank you. Trying my best!