Thanks for sharing this interesting phenomenon.
The condition is so rare that researching it is quite difficult and further understanding will probably take a long time to develop.
That is often the problem with rare diseases/problems. There are even exceptions in drug regulations for rare diseases, so quite a few small pharmaceutical companies are working on it - a very interesting field of work imho.
Thanks :)
Are you talking about orphan drugs? I'm a little ignorant of the field of pharmaceutical companies inner workings, but I've heard of some orphan drug programs.
We'll get there one day :P
ah yeah, that's the english word I was looking for ;-)