So they wouldn't consider seizures to be sufficiently dangerous? You don't know what is causing them yet, but you don't know that it isn't food related, so surely your doctor could say that she suspected food allergies to be causing them?
I'm sure you have looked into many things with her allergies that you haven't talked about, but just in case you haven't heard this... Before epileptic drugs, the standard of care for it was a ketogenic diet. I gather that the seizures are not considered epilepsy? But even so, I wonder if such a diet would help. I know that would be hard to even consider, given how restricted she is already. But the next question could then be, if a keto diet helps, might even some of the "safe" foods be causing a problem? (Heaven forbid!)
What are the 20 safe foods?
If it might help to talk about it, I'm happy to talk either here, or in private.
Thank you, @kiwideb :) You are right, we don't know what is causing the seizures so everything is possible. Doesn't seem to help with the daycare though.
The problem with ketogenic diet is that her suger levels have been acting up now. Before this all happened (seizures) we were pretty strict with sugars because she suffered from low blood sugars straight after birth. So she has been mainly eating meat and vegetables plus some berries. Now we had to add more "sugary" stuff .. since we don't know if insuline/ sugar is part of the problem.
At the moment she is able to eat chicken, pork, reindeer and lamb, sweet potato, cauliflower, broccoli, carrot, butternut squash, corn, raspberry, lingonberry, rose hip, lettuce, Teff- flower (porrirge) and some fruits (pear, peach, mango, banana, apricot) but only in certain form from a certain brand (ready mashed, no added sugar).
That's about it. Oh dear.
The reply I was going to make here ended up being very long, so I'm making it into a post. Are you ok for me to mention you in my post and make some comments on possible underlying issues and possible things you could try? First post will be about allergies. Then I might do another one about seizures tomorrow.
Sure thing! Can't wait for the post. :)