It is admirable to see all that you do to try to keep your son as comfortable as possible, trying to meet his needs and not let his condition be an impediment to his daily life.
I'm glad that Sean is becoming more understanding of himself over time, it's not his fault what he's going through and it's good to stop paying attention to the bad intentions of others.
He really is a warrior, I hope a surgery is possible soon and that he has the best and most hoped for results.
I loved reading your post and story, thanks for sharing it with us. Greetings and hugs!