Sometimes a piece of news breaks our lives, stops our rhythm, makes us feel that everyday life is transformed, that plans seem far away and that the urgent becomes relevant. One word among the many we heard froze our skin, only one was the one that pierced our memories and paralyzed us -Tumor - only it can open an abyss and make us fall into the depths of our fears!
When we receive news like this, it not only changes our loved one's life but also our own, then everything becomes present, we observe, listen and feel again, time becomes short and everything becomes urgent! Each moment acquires a different weight. Conversations become deeper and silences longer. We realize our humanity and how fragile our health is!
The bad news.-
Three weeks ago, my husband was diagnosed with a brain tumor. Since then, our lives have changed in ways we could never have imagined. But in reality, this story started much earlier. Almost a year ago, the symptoms began: a strange tiredness, sleeplessness, mood swings, subtle but persistent physical alterations. And then, more recently, severe headaches and gradual vision loss.
For months, every visit to the doctor in the public health system ended with a prescription to alleviate the symptom of the moment. Sleeping pills. Something for pain or stress, different treatments that did not improve the symptoms. Never a deeper look, never an X-ray or a CT scan, not even a suspicion that there was something else. And so the months went by and the discomfort became a daily occurrence and became part of life, waiting for an improvement that was slow in coming.
To sum up, in the end it was necessary to go private. After a CT scan and several tests, it was not a week before we received the diagnosis. We now know that all his symptoms had a cause: a tumor in the brain, a tumor that oppresses the optic nerve and her pituitary gland, that small but crucial gland that regulates so many functions in the body. After taking all these results and a neurosurgeon's report to our family doctor at the social security, that's when they found out that what my husband has is serious.
I wonder if many of his symptoms could have been avoided if the tumor had been detected when he was still small, perhaps his vision would not have been compromised. But we won't know that anymore, now I just want to look forward. It is difficult to share something so private, but I think that writing it down can serve as an outlet for me. I just hope that this is one more page in our lives and that in the end I can tell you that everything went well.
I don't know what will happen tomorrow. But today I want to look to the sky, embrace hope and find the courage to go on. This experience has taught us that we are stronger than we thought. And although we are alone in this country and the road is uncertain, we do not walk it alone, I know that God is with us!🙏
Spanish Text
A veces una noticia nos quiebra la vida, nos detiene el ritmo, nos hace sentir que lo cotidiano se transforma, que los planes se vean lejanos y que lo urgente tome relevancia. Una palabra en medio de tantas que escuchamos nos heló la piel, solo una fue la que taladró nuestras memorias y la que nos paralizó -Tumor - solo ella puede abrir un abismo y hacernos caer a lo más profundo de nuestros miedos!
Cuando se recibe una noticia como esta, no solo cambia la vida de nuestro ser querido sino también la nuestra, entonces todo se vuelve presente, volvemos a observar, escuchar y sentir, el tiempo se hace corto y todo se hace urgente! Cada momento adquiere un peso distinto. Las conversaciones se hacen más profundas y los silencios más largos. Nos damos cuenta de nuestra humanidad y de lo frágil que es la salud!
La mala noticia.-
Hace tres semanas, mi esposo fue diagnosticado con un tumor cerebral. Desde entonces, nuestras vidas han cambiado de una manera que no hubiéramos podido imaginar. Pero en realidad, esta historia empezó mucho antes. Hace casi un año, comenzaron los síntomas: un cansancio extraño, falta de sueño, cambios de ánimo, alteraciones físicas sutiles pero persistentes. Y luego, más recientemente, dolores de cabeza intensos y la pérdida gradual de la visión.
Durante meses, cada visita al médico en el sistema público de salud terminaba con una receta para aliviar el síntoma del momento. Pastillas para dormir. Algo para el dolor o para el estrés, diferentes tratamientos que no mejoraban los síntomas. Nunca una mirada más profunda, nunca una radiografía o una tomografía, ni siquiera una sospecha de que había algo más. Y así fueron pasando los meses y los malestares se volvieron cotidianos y pasaron a ser parte de la vida esperando una mejoría que se demoraba en llegar.
Para resumir, al final fue necesario ir por lo privado. Después de una tomografía y varios análisis no pasó una semana para que recibiéramos el diagnóstico. Ahora sabemos que todos sus síntomas tenían una causa: un tumor en el cerebro, un tumor que oprime el nervio óptico y su hipófisis, esa pequeña pero crucial glándula que regula tantas funciones en el cuerpo. Luego de llevar todos estos resultados y el informe de un neurocirujano a nuestro médico de familia en la seguridad social, es cuando se enteran que lo que tiene mi marido es algo serio.
Me pregunto si muchos de sus síntomas se hubieran evitado si se hubiera detectado el tumor cuando todavía era más pequeño, tal vez su visión no estuviera comprometida. Pero ya eso no lo sabremos, ahora solo quiero mirar hacia adelante. Es difícil compartir algo tan privado, pero creo que escribirlo puede servirme de desahogo. Solo espero que esto sea una página más en nuestras vidas y que al final les pueda contar que todo salió bien.
No sé qué pasará mañana. Pero hoy quiero mirar al cielo, abrazar la esperanza y encontrar el valor para seguir. Esta experiencia nos ha enseñado que somos más fuertes de lo que pensábamos. Y aunque estamos solos en este país y el camino es incierto, no lo caminamos solos, sé que Dios está con nosotros! 🙏
Thanks for stopping by. Take care!
My native language is Spanish, I apologize for any errors in translation.
All images in this post are my property.
English text Translated with DeepL.com (free version)
I am very sorry for the bad news but at the same time I just want to send you a hug. 🤗 And to say that I understand you. My sister was diagnosed a brain tumor a few years ago, but just after she completely lost her vision on one eye. And even then it was difficult and slow to diagnose it in the country where she lives.
I hope Spain is better in the health care system; she went to Hungary to a private hospital for a suregry and radiotherapy. The road is maybe long, but there are solutions, I wish you and your husband all the best and strength to fight this brain tumor!!
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Thank you my dear Mipiano. We are going through very difficult times full of uncertainty and words like yours give hope. I am also sorry to hear about your sister and I hope she is fully recovered.
I also hope and wish that here in Spain they manage to completely eradicate this tumor and that my husband recovers his normal life, that is what I wish for the most. 🙏🏻
Thanks for stopping by and for commenting. ❤️
Hello @mballesteros. I read the news your husband received. Devastating is the word I know as I felt when a close family member was diagnosed with Stage 4 Breast Cancer four years ago. We urged her to get a second opinion. I don't understand why in the public health system that the referral isn't labeled "rush". I've seen numerous misdiagnoses. I do know that once a family receives any type of life-altering news, nothing will be the same. And everything else we think is important is placed into a non-essential box. Moving forward each day with uncertainty is nerve-wracking.
Documenting the journey was a way of coping for me. I pray for your strength as you accompany him into the next phase with treatments and a positive outcome. It's difficult to share this type of personal news, and I appreciate it. Lean on each other and God.
Take care.
!LADY
Hi @justclickindiva.👋 Thank you for your good wishes. I am sorry to hear about your family member. You feel very helpless when you cannot help a family member in any way other than merely accompanying them in their illness. Something we have learned in this lesson is to seek second opinions privately, unfortunately we have lost credibility in some doctors of the public entity.
We only hope that God will put us in the hands of a good surgeon for the operation. 🙏🏻
Thanks again for your words and for stopping by.
I hope you are very well. 🌹
Thanks so much for your condolences. I appreciate it. Yes, second and third opinions if necessary if a satisfactory answer isn't given or conflicting diagnoses is present. Take care.
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I'm so sorry to meet you right now, but God knows the reason for things, so here I am. All these days I've been reflecting a lot on life, possibly inspired by Holy Week and past experiences that come to mind. Yes, life has changed a lot for you in just a few days, and it will likely continue to do so, but these trials always teach us very valuable lessons. I wish you health, family unity, and much strength to face what you're going through. A big hug to you and a blessing to your husband 🙏
Gracias Jesús, son muy lindas tus palabras, yo creo que a todos en algún momento de la vida nos viene una etapa reflexiva ya sea por algún evento desagradable o simplemente porque nos hacemos viejos😂 Como sea, en esos momentos es que aprendemos a darle el verdadero valor a las cosas que tenemos.
Y si, tienes razón, se que esto que estamos viviendo mi marido y yo nos va dejar una enseñanza positiva, de eso estoy segura.
Cuídate mucho y gracias por pararte por aquí. 👋
Very brave of you also. This helps so many of us. We are all on the road, with painful stops along the way. How do we handle it? How do we manage the inescapable. Sharing our experience takes away the loneliness of this terrible time.
I grieve for you and your husband. I share your optimism because the path ahead is uncertain so we choose to see the best outcome. I'm sorry for his suffering, for what he has lost so far.
Please do write about this, if writing helps you. It truly does help others.
My prayers for you and your husband, dear @mballesteros
Thank you dear friend. You are a being with a beautiful heart, I know you understand me. And yes, honestly writing this is a relief for me because in my case I can't share it with my family, my mom is in very delicate health and she worries too much about anything so this news would not be good for her.
Thanks again for joining me from afar! I send you a hug and take care of yourself and the family too! 🤗
🌷♥️🌷
This is such terrible news, I can only imagine what you must be going through. I wish you all the best with the process and treatment going forward and hope to read about a full recovery in the months ahead.
Thank you for stopping by and for your nice wishes. I will surely be sharing my husband's recovery, I will be very joyful and thankful to life and God then I will let you know.
Take care and thank you. ❤️
Oh, siento muchísimo leer esto. Y te entiendo demasiado bien… sé lo que es pasar por varios médicos hasta que uno se digna a mirar un poco más allá y hacer las pruebas que confirman ese temido diagnóstico. Así nos pasó con mi suegro, aunque su tipo de tumor no dejó posibilidad alguna de tratamiento.
Además, he trabajado como terapeuta ocupacional con personas que tenían tumores cerebrales. Sí, vaya ironía de la vida. Pero a lo que iba, que cada vez hay más posibilidades de tratamiento y si está localizado en un lugar accesible o el tipo de tejido tumoral permite su reducción, las secuelas pueden ser mínimas.
Como alguien que ha estado en los dos lados de vuestra situación, como profesional y como familiar de afectado, aquí me tienes para cualquier cosa que pueda hacer. Aunque solo sea escuchar o leer tus desahogos, como hiciste aquí, que no solucionan los problemas pero alivian. Un fuerte abrazo. ❤️
Gracias Paloma por tus palabras y por tu ofrecimiento como escucha para mis desahogos. 🤗
Siento lo de tu suegro. En el caso de mi marido solo en la operación se sabrá si le pueden extraer el tumor completamente, estamos orando para que así sea. 🙏🏻
Ahora nos queda esperar que nos den una fecha pronta para la cirugía.
Gracias otra vez por tus palabras Paloma. Cuídate! 😘
Ay, sí, confiemos en que todo sea rápido y, lo más importante, que haya una buena recuperación de la salud con las mínimas secuelas. La neurología ha evolucionado mucho en poco tiempo, ahora hay técnicas que parecen de ciencia ficción. Además que el cerebro no deja de sorprender por su capacidad de recuperación y adaptación. Envío mis enormes deseos envueltos en otro abrazote. 🤗