I'm sorry to hear about the things that you are struggling with. I learned recently that I have (h)EDS myself and it helps to know about it and understand . But it is very frustrating to feel thwarted in doing the things that you want or need to do...I hope that you continue to find all the wonderful details that make things easier and more comfortable and even enjoyable, from the small and everyday talks to the bigger projects and dreams. Thank you for sharing about your experiences.
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You know, I work on new "tools" for EDS and other diseases. I'll make them in 3dPrint and laser engraving.
I'll try to post something about these soon :).
Also, do you have something like Discord to talk about EDS-related topics and many others ?
Hi. I also saw that you make tools for eds symptoms, which is super interesting. I don't have discord. But maybe it is something that I will involve myself in. I look forward to seeing what more you post regarding your useful creations!