Just looked into dysautonomia/POTS - that seems aweful rough!
Thanks for sharing this part of your journey!
You do seem well aware of the relationship you are in with these other actors. Knowing their (hidden) motives and knowing you are rights takes strength. Stay strong and definitly consider sueing them! You are worth it!
Thank you.I also have a theatre background and can usually spot bad acting/people pretending to be nice. It helps.
Dysautonomia effects every aspect of life. I can't tolerate heat or cold. Regulate my body temperature, my digestion sometimes just stops and so many other things. oh and if I am upright too long (for me usually a matter of minutes) I literally faint. Pre/near syncope is the worse feeling. You can feel your body failing and I am sometimes stuck in this state for a half an hour. It's terrifying.
Drs and other health staff usually just eye roll when I explain symptoms and I am told to not be so anxious . I am not anxious just have a very high heart rate and ortho (upright) hypertension. I get no accommodations at drs offices and often faint /near syncope in the waiting room. They never believe me that i do in fact need to lie down or I faint. I am judged for being bedbound-like it's a choice.
There are no FDA approved treatments for POTS or ME/CFS despite the disease being known for decades and they are not rare. The only meds I am on are meds I researched myself. I am not a dr.
If I use my wheelchair I am judged harshly and accused of faking it/looking for attention. I can't win.
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