By the way the Biochem paper was really interesting. The sad part is so much more research needs to be done, Research of ME is so far behind MS that it's shocking to be honest...
Yeah the prevalence is 5x MS too. Yet no funding. I think MS is underfunded as well but they get so much more.
We need AIDS level finding bad fast tracked fully funded clinical trials. The numbers of folks with Covid induced ME are staggering. This really is a mass disabling event and no one cares. Like they didn't care in the 80's in the US (incline Village). Or the 60's overseas....
Seems like the government funding goes to all the wrong places... And they don't care about ME or MS until one of them actual get it. Even then it seems like so little is done. It's ridiculous!
Zero treatments. Effectively zero money for research and over 1.3% ++++of the population effected.
But we're mostly women so it's not like we're human beings deserving of treatments.
Exhausted but ok.
How are you?
The same, I think I'm going to take a quick nap. Not sure why I'm so tired!
I highly recommend regular naps. Enjoy your sleep.
Since the infection how are you feeling? Everything slowly improving?
Yes. My POTS is acting up a bit more than usual but otherwise things are getting back to normal. I'm just exhausted, which I guess is my normal.
By the way the Biochem paper was really interesting. The sad part is so much more research needs to be done, Research of ME is so far behind MS that it's shocking to be honest...
Yeah the prevalence is 5x MS too. Yet no funding. I think MS is underfunded as well but they get so much more.
We need AIDS level finding bad fast tracked fully funded clinical trials. The numbers of folks with Covid induced ME are staggering. This really is a mass disabling event and no one cares. Like they didn't care in the 80's in the US (incline Village). Or the 60's overseas....
Seems like the government funding goes to all the wrong places... And they don't care about ME or MS until one of them actual get it. Even then it seems like so little is done. It's ridiculous!
They call it CFS (we usually don't use that dismissive term anymore) but check out these numbers. Keep in mind 90% are undiagnosed (Similar to POTS). https://apnews.com/article/chronic-fatigue-syndrome-long-covid-cdc-c7f3dddbe88ec40d70448743fd479b30
Zero treatments. Effectively zero money for research and over 1.3% ++++of the population effected.
But we're mostly women so it's not like we're human beings deserving of treatments.
I still get told "diet and exercise"