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RE: Ecency Points with a Purpose Giveaway #6

in Spoonies Unitelast year

The MS thing is...complicated. It's a bit up in the air and especially with the drop foot and weird vision going to be explored again (this time with good health insurance). I don't fear MS as I already have ME which is just as debilitating but there are no treatments. Not just my opinion check out QOL studies . There have been several that came to this conclusion as well.

An MS diagnosis would be a game changer for me, if that's what it turns to to be because I will actually have treatments and be taken seriously. I have negative ANA but so do about 25% of MS patients so, that in itself is not as much of a ruling out as I was lead to believe . When I had optic neuritis they stopped at negative ANA and did no further tests. I also received no treatment for the optic neuritis (I'm not sure what that treatment would be).

Decades of medical neglect have left me too sick to seek care and when I do it's just one specialist sending me to the next one with no answers or treatment.

So yeah it's complicated to say the least.

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There is a bunch of tests that should be done with O.N. diagnosis, and ruling out MS is a big one. Hopefully they can find some treatments to actually help! ANA is a very non specific test as you already know. That sucks to be going through that, hopefully your Ophthalmologist will at least get that double vision cleared up.

Today I ended up posting on Leo, because ecency was acting weird with my pictures. I tried the boost thing again and denied! That makes me 0-2, oh well. I'll figure it out yet...

I hope you're feeling a little better today!

You got SBi from freecompliments though so that's good :). ecency is hit or miss on upvotes at times. Some of your posts have been boosted, so it is possible. :)

I'll give it a shot again tomorrow, I might get lucky yet!

You tend to have better luck if you post on ecency itself but yeah it's complicated. You can always promote your post though.

Tomorrow I'll try posting on ecency again, its's not a easy as PeakD or Leo I've found so far.