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RE: Stem Cell Therapy - Waiting for a cure that may never come

in GEMS2 days ago

Thank you for your comment.I'm thinking a lot about this kind of treatment…
I'm not sure if stem cell therapy helps in the long run, and it's too expensive for many people to afford. They already tested biological treatment with me, and it was only on the market for seven years, so we don’t really know all the side effects yet. The same goes for stem cell therapy—we still don’t fully know what side effects it might have. I understand how hard it can be to live with an untreatable condition. Can I ask where you are from? Stay strong!

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I don't really know whether stem cell treatment will come with a lot of size effects. However I'm thinking that it involves tampering with things like cells, editing the genes or even the DNA as well as the bone marrow. So maybe side effects like sterility might come up, including other ones we might not know.
However, it's very expensive at the moment despite all the uncertainty that comes with it. However if it were cheap, I wouldn't mind because I will take anything other than my condition.

I come from and still live in Nigeria

We may have an option to try it in the future, but it is not possible at the moment. It costs between $5000 and $50,000, and we definitely don't have this money. I don't believe health care will cover those costs if this kind of treatment ever comes into existence in my country. I can only imagine how hard it must be for you. How does health care in Nigeria work? Do you need to pay for your medications, and are they covering the cost of treatments and medical examinations?

That's actually a lot of money honestly. I've been hoping there will be cures that wouldn't cost a lot and actually be accessible. Which country are you from?

You're solely responsible for your medications in Nigeria and there are no options provided by the government to help people with my medical conditions. I spend a lot on monthly basis on medicines and the conditions makes it hard to even live a normal life. The government is corrupt and doesn't care about anyone. I've been hoping that someday I can afford to leave the country and go somewhere else better.

Oh boy, I cannot imagine being sick and living without health care…you used the right word…corruption…how can they look away when so many people need help 😔 I'm from Slovenia, but living in Austria…I moved because of the better pay and also because of the better health treatment. They have a lot more experience. They really take care of me. The only thing I need to pay here is for my prescription for pil, which is around 7€…I can be grateful I have options like this. It's sad the country won't help… I'm so sorry…But I hope you will have a chance to move soon.

We have health care but it's only private hospitals. We don't have capable doctors in the public hospital and the government don't care about anyone. No one takes care of you here unless you have a lot of money to afford big medical care. So it's really terrible here.

I can't imagine how you can pay for everything yourself…I looked up how much I would need to pay for my medication in the US, and I was in shock...every 2 months, around 10.000 dollars, if not more…how the hell can people afford this 😳 how can a country do that to her people…how should I pay for all my medical examinations, like CT or MRt?! Do you have even possibility to have those examination?!