This is something crazy I came across today.
So, there is this FDA approved drug called Hemgenix. In short, it is a gene therapy used for the treatment of Haemophilia B, a rare disease characterized by prolonged bleeding even from small injuries.
The drug is called Hemgenix and it also gained approval in the EU in 2023.
Now, what is really interesting about this drug is that it currently holds the record for being the most expensive FDA approved drug, priced at roughly $3.5 million per treatment π€―
Sounds a lot right? Well, supposedly it does cut down costs per patient by A LOT.
Hemophilia B patients require regular treatments of all kinds and are subject to a lot of hospitalizations during their lifetime. Their median lifespan in the US is 77 years and it is estimated that their lifetime direct medical costs average to over $47 million per patient. HOLY FUCK!
Current clinical trial data show that the hemgenix treatment can eliminate the need for other treatments and the company claims that the drug saves the US healthcare system by 5β5.8 millions per patient. That's some big numbers!
Dunno how to close the numbers are To reality, I took them from this article which to be fair is well references. It also has some other crazy expensive FDA approves drugs used for other rare diseases.
I am just glad I am a relatively healthy person not afflicted by weird rare conditions π«£π
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I just checked: It is actually covered, with certain restrictions0 by Medicare and Medicaid in the U.S. (publicly funded healthcare). Wait till Trump and Musk hear about this :)))
Gotta get rid of all the freeloaders π π
!hiqvote
More expensive than that of SMA disease.
Great informations. Keep it up.
Wow!, that's why it's good to pray for good health. Spending millions of dollars to stay alive. Where can a common man get such?
Da fuk π, $3.5 million for one treatment, at that price, the side effect better be turning into a superhero or automatic genius realm achieved or something. Jokes aside, itβs crazy how life laving stuff can be so expensive
3.5 million pocket change for you daddyβ¦..
!pimp
drugs for rare diseases are for obvious reason the most expensive... not affordable without state cover
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now, it's 1 PIMP cheaper
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It's expensive due to small number of patients it treats.
!BBH
!pimp
I'm curious how long that this company can hold the exclusive monopoly on this medical technology or is it after they made 10 to the 10th power of profit$ before some sort of competition could bring prices down.
It'd be great if some retiring compassionate pharmaceutical gene engineer on the inside accidentally leak the secret out and save the medical system, tax payers, health insurance providers, patient and save wear & tear of printing machines saving untold billion$.
As Theodorus of York would say, "Nah!"
First time am seeing a drug like this dont know it exits, i guess the Government can have alot of drugs for different cures even the ones that are hidden in secret
I am glad that I am healthy too. Those medical costs sound kind of crazy.