Recuerdo exactamente el momento, en el que la Neuróloga infantil que evaluó a Cristian Josué, se dirigió a mi de manera muy fría y hasta sarcástica, indicándome que era muy probable que mi hijo tuviera un problema de retraso, no fue para nada grato y más por la manera poco delicada como ella se expresó, precisamente sobre la manera como afrontamos los diagnósticos es el tema elegido para esta semana en el #MomLife Week 41 || Daily Challenge, si deseas conocer más de los temas propuestos para esa semana o las anteriores por acá les comparto el enlace con toda la información, ahora les compartiré mi experiencia y otra muy cercana.
I remember exactly the moment when the child neurologist who evaluated Cristian Josué, addressed me in a very cold and even sarcastic way, telling me that it was very likely that my son had a retardation problem, it was not at all pleasant and more for the indelicate way she expressed herself, precisely about the way we face the diagnoses is the theme chosen for this week in the #MomLife Week 41 || Daily Challenge, if you want to know more about the topics proposed for this week or the previous ones here I share the link with all the information, now I will share with you my experience and another very close one.
Cómo lidiar con un diagnóstico en tu hijo/How to deal with a diagnosis in your child
As I mentioned, in the previous paragraph and also last week my son's preschool age was quite busy in terms of visits to specialists as it was presumed hyperactivity, that involved tests and visits to several places, among them was required to the evolution and opinion of a child neurologist.
I do not remember through whom or how I arrived at the office of a specialist in Chuao, but I do remember that he is one of those doctors in pediatrics who do not seem to like children very much, he asked me a lot of questions about my son, specifically the ages or months in which he had managed to sit, crawl, walk, talk, among others. After that she told me in a very cold, unfriendly and even sarcastic way, it seemed that we disgusted her and she told me that Cristian had a delay, this without any other exam or test, she also gave me a receipt that I still have, Thank God, a friend of mine, upon learning of my anguish, recommended another child neurologist, who, with tests in hand and several consultations, indicated to me that my son had nothing more than the behavior of a normal child.
Now, I must confess that at the moment that doctor said those words to me, I felt that I was collapsing, that I had a huge challenge in my hands and that it would consume my life, both me and my son, maybe when you read this you will say "what a dramatic girl! Maybe it is true, but I think all mothers want to lead a normal life and that our children also have them and although there are conditions or accidents that can be overcome very well, like the one of Cristian Josué's nose fracture, thanks to a ball in the nose, there are very strong cases and I admire the mothers or fathers who have had to fight those battles.
For example, and I once commented in a publication related to the Autism Spectrum Disorder, as I saw very closely the reaction of a friend and co-worker and her husband when her son was diagnosed, she as a mother felt very sad and when she told me she cried, but the reaction of her husband, when she informed him of the diagnosis, was a terrible annoyance that led to an argument, because he simply did not accept it, She was affected for the first few days, I presume that she was trying to digest what was happening and her husband's denial was added to it, she, not having anyone to unburden herself to, told me, knowing that seeing the situation from the outside, she could be a little more objective, so I told her that in my opinion her husband was in denial, to give him time to digest the diagnosis.
Ahora bien, esta familia logro avanzar con su hijo al cual luego le cambiaron el diagnostico de Autismo a Síndrome de Asperger, su madre, padre, hermano mayor y hasta los abuelos se involucraron, en las terapias, la alimentación adecuada, y todo lo relativo al bienestar del niño en cuestión, hasta un animal de compañía incluyeron en la familia pensando en él y los resultados hoy en día son maravillosos.
Now, this family managed to move forward with their son who later had his diagnosis changed from Autism to Asperger's Syndrome, his mother, father, older brother and even the grandparents got involved, in the therapies, the proper feeding, and everything related to the welfare of the child in question, even a pet was included in the family thinking of him and the results today are wonderful.
In conclusion, I believe and I say I believe, since very little time or months I dealt with that first diagnosis given to me by that child neurologist, but it is something hard to accept, digest and face, but if we do not seek the help that our children need, who will? if you feel like crying, cry, scream, kick, but never give up is not an option when you have a child who needs you, your support, he alone will not seek the help he needs, so go ahead even with tears in your eyes, take one step at a time, but accept that this situation is a reality that can be very hard at the beginning, but it will be even harder if you do not give the right treatment and on time. So I leave, waiting to read your impressions in the comments box.
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Esa Neuróloga en definitiva no tuvo ningún tacto. Lo importante es que tu hijo esta bien. Otra cosa:
No son dos cosas distintas. El autismo tiene diferentes sindromes. En este caso el niño si es autista, pero sindrome de Asperger, mi hija es autista, pero su síndrome es de Kanner, el cual es contrario al Asperger, pero por ser autistas comparten algunos comportamientos similares. Un abrazo.
Hola @elizabeths14, muchas gracias por aclarar esta parte no lo sabia, creía que era cosas diferentes no relacionadas, pero definitivamente todos los días se aprende algo y ms aquí en #hive donde hay tanta diversidad de contenido, como bien señalas esa Neuróloga no tenia el menor tacto me hizo sentir muy mal, como madre uno sufre mas por los hijos que por uno mismo, ese momento esta vivo en mi mente porque fue sumamente desagradable, así que agradezco enormemente haber encontrado a ese otro Neurólogo que era otro tipo de persona y digo era porque era ya un señor de cierta edad y presumo ya no esta en este plano terrenal. Gracias por pasar por acá a leer y comentar.
hola muy reflexivo este tema y de suma importancia, en mi familia tenemos un niño con un diagnóstico y estamos no solo trabajando en su atención personal, sino defendiendo sus derechos como ser para lograr su inclusión e igualdad en muchos escenarios de la vida cotidiana...saludos
Hola @cirangela, me encanta verte de nuevo por oca, como señalas es un tema de importancia y reflexivo, ya que muchas veces los derechos de estos niños y sus familias son violados al no permitirles su participación en iguales condiciones en algunos aspectos de la vida diaria, ruego desde mi corazón para que Dios les permita ganar esta batalla, no solo a ustedes también a muchas otras familias que la estan batallando.
Hola @actioncats! Yo también tuve que consultar a una nefrólogo infantil pero al contrario de tu experiencia, está doctora fue enviada por Dios para ayudarme a entender lo que sufre mi hija. Es una chama joven, amable y cariñosa, encantadora con los niños y por ahora es la clave de la recuperación y la pronta salud de mi bebé. Q bueno q no te quedaste con una sola opinión, lo aplaudo. Saludos.
Que bueno que encontraste una especialista con un corazón y mente diferente de verdad siento que muchos profesionales no tienen la vocación necesaria y estudian ciertas carreras solo por renombre, Gracias a Dios en mi camino una amiga había vivido algo similar y me ayudo refiriéndome a ese otro Neurólogo, un abrazo grande @mairimgo23