Why???
Where did we fail...
How can we make it better...
This will cost an arm and leg...
Thoughts kept running in my mind as I tried to process everything today when we left the clinic earlier this morning. For now, Dyn has been diagnosed with Global Developmental Delay, but if there are no other improvements after months of therapies and exposure, she might receive a diagnosis of Autism Spectrum.
For context, we went to Sandbox Clinic to get a diagnosis for Dyn-dyn's delay in speech. We know that there is something wrong, but we cannot point out what it is and how we can improve.
Before coming to the clinic, we already had an idea of what could be her case. The signs are screaming already, so we somehow know the results as we have consumed a lot of media from articles, videos, and even advice from doctors we saw online. But the fact that it is being stated to you by the expert in your face and explaining everything is a total shocker.
That was the hardest 1 hour of my life as a parent when Dyn was being evaluated by the doctor, we just looked at her and did not even interact as we were told by the Developmental Pedia to not interfere and join our kid so that she could hear what our child is saying.
The tests were simple, such as determining the colors, puzzle solving, question and answer, singing ABCs, etc. At first, we were confident that Dyn could answer colors by singing ABCs and counting. We were also asked if she could walk by herself and not tripping over and even climbing the stairs up and down.
She knows it by heart and when she answered it to her doctor, we were happy that she could do so. But for the socialization test, imaginative play, etc this is where she falls short.
She gave her stackables, a cup, and a race car. We let her play and were advised that we should just look at her and not interact with our child unless she calls us I know that it may not happen as she rarely calls us.
We saw her frustration. She just sang some songs that were on the top of her head, but other than that, after singing, she became frustrated again and continued playing. It is a heartbreaking experience for me. I am getting teary-eyed about what is happening, but I need to be strong on what's to come.
After those tests, the pediatrician told us what could be Dyn's case. She said that though it is good that Dyn does know the parts of her body, and has splinter skills as the pattern of learning should be, speaking and interacting first before knowing ABC, colors and animals and reading.
Somehow it is an AHA moment for me, as Dyn can sing songs and memorize tunes easily. She can read words repeatedly shown to her, but then again, it shouldn't be the case. She needs first to become more verbal and give cues to us before she can spell everything and sing a song for us.
The doctor said and hoped that it was just a delay and that if it was we should take action immediately to catch up with the missing pieces. We were told to get both occupational and speech therapies twice a week for the next three months and after that, enroll Dyn in a playschool so that she can have interaction with other people outside our home.
We want to, but all of them are costly. Each session costs more or less than 2,000 PHP, thus computing everything we might spend more than $2,000.00 on everything. (This is just a ballpark figure. It may decrease or increase depending on other stuff)
After thanking the doctor, she mentioned letting our child play in a nearby park first to try and explore as she needs that often.
We let her roam around and did not hold her hand for the time being. This is something that I rarely do every time we are outside, as I want to make sure that she is safe.
We also saw small stairs that didn't have any handles. April advised to let Dyn climb up and down on the stairs on her own and we will just supervise her. Again, this is something that I will never do, as I am afraid that he might fall over. But I reminded myself that I needed to let her do it or else she would not learn, as her overprotective father would always be around to keep her safe.
We met with @romeskie before we left BGC as she was around the area and each time I went to Taguig I notified her for a mini face-to-face meet-up.
April and Rome talked about Dyn's case and gave some positive words and affirmation, she knows that the battle will be hard in the future but hopes that we can also make everything better. It is always a blessing to have one parent friend that you can tap on during these hard times as both April and I have a small circle of friends to start with.
We bid goodbye to Rome after some chitchat as she and Aya have other errands to do and we need to go home as well since the travel time is quite long. We arrived at our home around 4:30 in the afternoon and bathed Dyn.
While we were drying her body and hair with a towel she said (yakap) hugs and hugged me tightly. My tears started to fall, and I just hugged her back and said I love you Dyn-dyn recalling these while writing this blog makes me sob again. I never knew that I would be emotional as I never was before. Being a parent changed me to this. I hate this feeling of being helpless as I can do stuff on my own but this is beyond my control I just leave it in the hands of the Almighty one.
After she was fully dressed, we played and tried to incorporate some activities into her. She is getting confused about what is going on as April and I tried to play with the toys and tried teaching her to say the exact words instead of her usual songs. She cried because of frustration and we just hugged her back saying sorry. She stopped for a while shouted the word yakap and returned the hugs that we gave.
I was contemplating if I should include the next text after this post as it was never my nature to ask for any help but this thing is so important to me that I will swallow my pride and seek assistance because we are running short.
If you can donate or provide some financial assistance with Hive/HBD for the funding of Dyn's therapies, it would be extremely helpful, and I would be deeply grateful. I understand that this might be a long shot and I am not that expectant though as we are all saving up for something, and have our battle, so no worries.
I sincerely appreciate any support you can offer and thank you for your time.
Hindi ibibigay sa iyo ng panginoon ang pagsubok na hindi malalampasan. God bless you and your family.
Thank you Dantrin! Same to you God bless you and your fam as well.
Hello, kuya tp! Parang same sila ng case ng kapatid ko.
At the age of 3 hindi pa nakakapagsalita si younger brother, sobrang hyper tapos may mga tasks syang hindi nagagawa na dapat nagagawa na nya in his age. Not sure with my brother's diagnosis pero nag speech therapy din sya non sa PGH tapos ipinasok sya ni mama sa summer class para magkaroon lang ng interaction with other children.
Ayun, sa awa ni Lord, before sya mag 4 yrs old nakitaan na namin sya ng improvement (nakakapagsalita at natututo na makipag socialize with other children)
Ngayon, 16 yrs old na si brother at parang tropa tropa na kami hahaha. Graduating na sya bukas, with honors.
Hello CLiff for good na ba ang pagbabalik mo?
Yep super hyper sya in some cases, social task madalas sya bagsak, pagdating sa logical and reading advance sya sa age nya since she can read books like literal na reading talaga ( walang comprehension pa naman )
Layo ng PGH sadt.. pero ayun na nga, plan namin siya either i playschool or daycare this July start ng class to see what will happen next. Naghahanap nadin sya ng kalaro, pag nalabas kami ng bahay ang kaso ayaw syang kalaro nung kapitbahay hahaha.
KOOL! AYos yan ganda ng news.
Nakikiramdam muna ako if kaya ko na ba bumalik. Let's see hahaha.
Manifesting sa magandang progress ni Dyn this coming months 🙏
Malalagpasan nyo rin yan @tpkidkai...
Yung sister ko delay din speech nun.. pro nung nagsimula magsalita, naging talkative naman gang Ngayon haha.. just continue training her cognitive.. makakatulong yun.. at eencourage magsalita Lage..
Nako ito din ang hino-hope ko na mangyari! Kahit sobrang daldal nalang, kesa ganito hhaha.
Ou nako nag rage-research kami sa lahat ng bagay ngayon para maka sabay.
Salamat Jane! Appreciate the help.
I hope everything will be alright! Cheer up!
Thank you Douceink for dropping by - yes we are trying to 😃
Big hug @tpkidkai and April!
Naalala ko yung time na nadiagnos yung eldest ko, we were shaking at yung luha ko talaga di ko mapigilan, ang hirap sating parents parang kinukwestyon natin saan tayo nagkamali at nagkulang. May speech and developmental therapy si kuya before at nahirapan sya mag adjust sa big school environment but thank goodness talaga nag improve sya. Totoong mabigat sya sa bulsa at talagang tyagaan yung pabalik balik namin sa center. Ngayon medyo hirap padin sya to express himself lalo pag tagalog pero laking pagpapasalamat namin na nagconsult kami at na therapy sya. Kayang kaya nyu yan Tp! Hug kita Dyn!💗
Salamat Mars Cindee -
Nandito kami ngayon sa phase na ito, we are questioning saan ba talaga kami nagkamali at yung mga bagay na dapat sana di namin ginawa.
Hala! Buti nagkaroon ng improvement. Yung traveling din talaga at center ang fini figure out namin, may listahan na binigay si doc nang available sa San Pablo ang problema malalayo parin sa bahay. HAHAHA.
Nako hopefully talaga kayanin ng katawang lupa namin lalo na si April dahil madalas sya ang kasama ni Dyn everyday sa bahay.
naalala ko before kami nagstart ng therapy nya sobrang hirap kunin yung attention nya at yung eye contact talaga wala, pero ngayon isang tawag na lang lalo pag di sya distracted sa tv o kung anu pa man, speech and occupational ung pinakanagtagal sya na therapy, naging habit ko na din tanungin sya everyday kung anu kumusta at anu ginawa nya sa school o kung saan man kahit nung umpisa wala talaga akong makuhang sagot. wish ko makakuha kayo ng slot sa therapist na malapit lang sainyo kasi sobrang pagod sa byahe yan at ang hirap maghanap ng slot ng therapist sa totoo lang.
sending hugs to you and April
I hope Dyn will get better. It’s going to be hard for you and April but stay strong as parents. You will need them.
Salamat Witz! We are trying to stay strong bilang magulang. Kanina we changed our approach na kay Dyn, medyo frustrating to everyone pero kailangan talaga ng maraming patience.
Walang choice, patience lang talaga need nyo now TP. Kaya nyo yan ni April!
Many children undergone therapies and went well. Pray lang po tayo para kay baby and magpakatatag po para sa kanya.
Thank you Leray for the prayer! We also saw some results sa iba and hopefully it will be the same case kaya medyo napapa search na kami ng mga lugar that we can get both OT and Speech theraphy na mura lang pero quality parin.
I hope everything will just be fine for Dyn. My youngest brother also had trouble speaking when he was still a toddler and my parents at that time was already thinking that there is something wrong. But with God's grace, he turned out just fine and the case was just delayed speech. I hope Dyn is just undergoing delayed development.
For now, reblogging this post is all that i can do to extend my help. Pakatatag kayo Kuya. Sending my prayers.
Hopefully ganun lang din si Dyn may chances pa naman daw na Global delay lang kaya needed ng therapies for that. Sa ngayon home remedy at therapy muna kami para dito.
Huy ano ka ba! Okay lang yan - a simple prayer for our kid and ourselves are sufficient already! Walang kaso yan, salamat ng marami.
Try to expose her Kuya to different environment na din. Mas maraming tao na makakasalamuha niya, mas okay. 🙏
Nako ou - more outside activity kami now. Medyo mahirap lang maghanap ng bata sa area namin hahah.
Maka kidnap nga ng bata kahit isa lang. HAHHAHA naging masamang tao pa.
Entiendo los momentos difíciles por los que están pasando, estoy segura de que lo superarán juntos. Al notar tu confianza en Dios me atrevo a dejarte una oración poderosa que ha ayudado a otros niños a curarse, puedes repetirla las veces que sientas. Aquí te la dejo:
La frase es :
El Espíritu Todopoderoso viviente es la vida de mi hijo
El Rio de paz de Dios satura todo su Ser .
El amor de Dios llena su Alma .
El poder vitalizador, sanador y armonizador de Dios
se manifiesta ahora en su mente y su cuerpo .
La vitalidad y la inteligencia de Dios están ahora ya
resucitadas.
Y yo doy Gracias ..
Thank you for the heartwarming message and the prayer included on it I felt that.
It is indeed a tough time for us, we are slowly processing everything but we also know that God will always bring peace in this hard times.
Sorry, to hear about your daughter's case. I will remember her in my prayers.
Thank you Arlene! I appreciate it and claiming victory over this predicament. The Lord is and will always be good.
This is really tough for a parent to go through. I hope your family will get through this. Prayers and !LUV for Dyn-dyn's therapy to be successful.
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Thanks Juan for the prayers and the love there. Our little nest is okay, kinda devastated yesterday since what our belief got shattered pero we are on the road of coping up, looking forward sa improvement with the therapies and searching for one that is affordable but quality centers nearby. Hirap din kasi if mag luluwas pa sa Manila for these type of stuff.
Sana ay may makita kayo na mas malapit pero quality pa rin na nagooffer ng same service dyan sa malapit lang para less gastos at less pagod.
Sorry to hear this, if its your child that is involved talagang gugustuhin mo na gawin ang lahat para lang mapaayos siya. Sana malampasan nyo tony pag subok na to. Fighting lang oi 💪❤️❤️✨
Sympre naman fighting lang tayo! Baka Tp yan haha.
Ngayon na ge gets ko na yung sinasabi na pag para sa anak kayang gawin ng magulang ang bagay bagay. Mahirap pero lalaban parin.
Aw sorry to hear about Dyn TP, it was heartbreaking 🥹.
Yet, on the bright side, there is still chances maging okay Ang lahat.
One of my office mate, diagnosed with autism din Ang anak Niya. With therapy twice a week, as of now laki Naman Ng improvement. Kaya be hopeful.
Thanks te Lhes! Yes hopefully we can intervene pa so that we can see improvements along the way.
Ang hirap nang ganito, yung utak ko parang ewan nadin lalo.
It was really hard, pero be strong para Kay Dyn!
💪💪
I hope everything will be okay, TP!
Be strong.
!PIZZA
Thank you Ji!
We are trying our best (,,>﹏<,,)
Slowly pero been equipping ourselves sa mga magaganap not only for Dyn pero sympre sa amin ding family.
$PIZZA slices delivered:
@jijisaurart(1/10) tipped @tpkidkai
Awtsss may ganyan pala kayong pinagdadaanan. Now ko lang nabasa. For sure kakayanin nyo yan. Basta kasama nyo si God walang imposible. Lavarn. 💪
Sorry to hear about this @tpkidkai but don't lose hope, God is watching over Dyn-dyn.
Just continue to give her time to play na may Maka interact sa kanya, iba kasi Yung panonood lang Ng videos kasi Wala stang actual na kausap. Let him play with other kids too kailangan nya yon.
Hopefully God will provide your needs for Dyn-dyn's therapy.
Now ko lang to nabasa, now lang ulit nakabalik.
Nako we are exposing her na sa mga tao ngayon. Though walang masyadong bata sa area namin talaga madalas kami-kami lang.
Thank you te Jen for the encouragement, we are seeing improvements from our day to day activities naman hopefully mag tuloy-tuloy sha.
Ah Yun pala Sige lang mag nursery na ata sya soon she will met new friends and new kids at school na.
Yes hoping for a development, one step at a time lang