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The journey does not end with a diagnosis; rather, it marks the beginning of a relentless struggle against the disease. One parent captured this sentiment perfectly, stating, “My goal in life is for my son to outlive me.” This reflects the stark reality that many parents face daily, as they grapple with the burden of their child’s condition and the uncertain future it entails.
The Fight for Life
The fight against cystic fibrosis is not just personal but deeply rooted in medical history. Just a few decades ago, patients with this condition faced limited options and relied heavily on emerging treatments and therapies. The emotional toll this takes is profound, as families witness their loved ones bravely confronting their health challenges.