I'm told there are no treatments. It is a genetic disorder, so any "treatments" would be palliative.
It manifests with different folks in different ways. And I don't know that I have the condition, I can't get anyone to test me.
I suspect I have it, because I've had a lifelong tendency to bruise very easily, I've always had extremely loose joints (we used to say I was 'double jointed') and extremely elastic skin.
Now that I'm older, my spine is more or less collapsing, I have worsening scoliosis, but also kyphosis (widows hump/osteoporosis) and lordosis, and lastly, in 2016 I began to manifest extreme leg and foot cramps, but only after I lie down.
So I take magnesium for the cramps, Tramadol (pain) and Baclofen (muscle spasms) and that's about it.
This is what my neck scan looks like or did in like 2014 (we almost did a fusion, lord god I'm glad we didn't)
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Wow, that's quite a bend in your spine. I'm not a doctor, but at a glance I can see somethings a little off. Have you considered collagen to help with your skin and joints? We make bone broth whenever we can for the collagen and minerals, make soups out of it. We also take turmeric supplements, to help with inflammation.
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Now not so much. I like to think I eat relatively healthy, now days any way.As a young person @ironshield, my skin and joints being loose was not a problem, in fact in many cases it was an advantage.
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