Very interesting.
As a former cocktail bartender for many years- some might even say decades, I have seen many thing to do with alcohol consumption- many of them not very pretty either, but I have never heard of this, so thank you for teaching me something new.
Having a rare heart condition myself, I understand how hard it can be to cope with such rare conditions and I know that there are so many out there that no-one hears about and so many that they haven't even discovered yet...
No doubt you're well acquaintance with all of the symptoms of this syndrome, then lol. I know how you feel, I have seen some things I would like to forget.
I'm sorry to hear about your condition, may I ask, what pathology is it?