I was sitting with my friend Brandon last night, who lives every day of his life with half the lung capacity of us regular healthy individuals. The reason?
Cystic Fibrosis. It is a degenerative disease which slowly incapacitates the function of the lungs until the person stops breathing one day.
Here's the catch. Much like cancer, there are treatments available to make it easier to deal with the disease, but no real cures.
A new drug was developed and made legal as a prescription in Canada. This drug is called Orkambi and has been proven to help the diseased individual, and was also proven to start to reverse the degredation of the lungs in studies.
The thing is, the drug would cost a user 250,000$ per year without insurance, and 99% of insurance companies who offer extended drug plans do not cover this drug.
The following petition is in place to lobby the Canadian government to allow this drug to be prescribed to CF patients and subsidized so average people can access the treatment.
I know in Ontario right now, all doctor prescribed medicines are completely free for anyone under 25.
This includes my friend who is currently 23.
I would love it if you took a moment.ent to add your name to the petition so that there is a chance we can work together to help these people in need.
Remember this is something people like Brandon are born with. They didn't have a choice or make any bad decisions to cause it to plague them.
If we all work together, we can help save lives.
Thank you in advance for anyone who puts their name on the list.
Cheers,
Chris
You got a 2.35% upvote from @upme thanks to @christheaudioguy! Send at least 3 SBD or 3 STEEM to get upvote for next round. Delegate STEEM POWER and start earning 100% daily payouts ( no commission ).
I enjoyed this post, Chris (I'm also a Chris, hey!). The thing is, I fear that cures exist, but it is not beneficial to big pharma to release them as far too much money is made on temporary treatments.
If only human life was worth more than money...
Hey I'll do whatever I can to save my friends life. It's a shame really
Sneaky Ninja Attack! You have just been defended with a 8.99% upvote!
I was summoned by @christheaudioguy. I have done their bidding and now I will vanish...
woosh
A portion of the proceeds from your bid was used in support of youarehope and tarc.
Abuse Policy
Rules
How to use Sneaky Ninja
How it works
Victim of grumpycat?
Congratulations! This post has been upvoted from the communal account, @minnowsupport, by christheaudioguy from the Minnow Support Project. It's a witness project run by aggroed, ausbitbank, teamsteem, theprophet0, someguy123, neoxian, followbtcnews, and netuoso. The goal is to help Steemit grow by supporting Minnows. Please find us at the Peace, Abundance, and Liberty Network (PALnet) Discord Channel. It's a completely public and open space to all members of the Steemit community who voluntarily choose to be there.
If you would like to delegate to the Minnow Support Project you can do so by clicking on the following links: 50SP, 100SP, 250SP, 500SP, 1000SP, 5000SP.
Be sure to leave at least 50SP undelegated on your account.
My worries about the drug can it really be a cure ..?! will the edge of hope the drug could cure it.
It's never been touted as a "cure" like an antibiotic for an infection is. It was made to improve the lives of CF patients, but then it started to reverse the disease in trials which was not even it's intention. It's available now, you'd just have to be filthy rich to actually get it
Congratulations @christheaudioguy! You have completed some achievement on Steemit and have been rewarded with new badge(s) :
Click on the badge to view your Board of Honor.
If you no longer want to receive notifications, reply to this comment with the word
STOP@christheaudioguy you were flagged by a worthless gang of trolls, so, I gave you an upvote to counteract it! Enjoy!!
Congratulations @christheaudioguy! You have completed the following achievement on the Steem blockchain and have been rewarded with new badge(s) :
Click here to view your Board of Honor
If you no longer want to receive notifications, reply to this comment with the word
STOPDo not miss the last post from @steemitboard:
Congratulations @christheaudioguy! You have completed the following achievement on the Steem blockchain and have been rewarded with new badge(s) :
Click here to view your Board of Honor
If you no longer want to receive notifications, reply to this comment with the word
STOPDo not miss the last post from @steemitboard:
Congratulations @christheaudioguy! You have completed the following achievement on the Steem blockchain and have been rewarded with new badge(s) :
Click here to view your Board of Honor
If you no longer want to receive notifications, reply to this comment with the word
STOPDo not miss the last post from @steemitboard:
Congratulations @christheaudioguy! You have completed the following achievement on the Steem blockchain and have been rewarded with new badge(s) :
Click here to view your Board of Honor
If you no longer want to receive notifications, reply to this comment with the word
STOPCongratulations @christheaudioguy! You have completed the following achievement on the Steem blockchain and have been rewarded with new badge(s) :
Click here to view your Board of Honor
If you no longer want to receive notifications, reply to this comment with the word
STOPCongratulations @christheaudioguy! You have completed the following achievement on the Steem blockchain and have been rewarded with new badge(s) :
Click here to view your Board of Honor
If you no longer want to receive notifications, reply to this comment with the word
STOPCongratulations @christheaudioguy! You have completed the following achievement on the Steem blockchain and have been rewarded with new badge(s) :
Click here to view your Board
If you no longer want to receive notifications, reply to this comment with the word
STOPCongratulations @christheaudioguy! You received a personal award!
You can view your badges on your Steem Board and compare to others on the Steem Ranking
Vote for @Steemitboard as a witness to get one more award and increased upvotes!
Congratulations @christheaudioguy! You have completed the following achievement on the Hive blockchain and have been rewarded with new badge(s) :
You can view your badges on your board and compare yourself to others in the Ranking
If you no longer want to receive notifications, reply to this comment with the word
STOP