Awesome introduction post Steve!
It's truly amazing how you and your wife have committed yourselves to raising awareness for DMD by creating the 79 Exons charity initiative. Raising awareness and providing counseling services for families coping with this condition is an impactful way to make a difference for the better!
It's really good to see local support too, Adelaide Town Hall really provided a powerful display in support of WDAD.
It's super cool how you're heat pressing your design work onto clothing and incorporating this into your initiative as well.
Hive is definitely the right place for a brilliant mind like yourself who obviously has a big heart for children, and I assure you that everyone on Hive will be in full support of you losing your Steem keys given the history of the place.
I'm happy I was able to help you feel welcomed here. Once in a while I stumble onto content like yours and it stands out to me in a big way :)
"A Dad Will Do Anything"
Indeed :)
A big hug from me to you and your amazing family, and may your journey on Hive help with your passionate goal for raising awareness for Duchenne muscular dystrophy!
We've got a stack of ideas that we'd love to get off the ground. One day, I'm hoping to be able to open an holistic centre that can help all people with muscular dystrophy (there's something like 60 different types of muscular dystrophy) - a place where an array of professionals can offer help to families and patients in the one place. I really want it to be inclusive from the second someone enters the car park - even to the point that there are no 'disabled' parks, because all of the parks are sized to cater for specialised vehicles.
Because we're approaching summer, I'd like to offer a beach wheelchair hiring (or even a free) service at local beaches because a road-type chair cannot go onto a beach - the wheels are not sand friendly! (My son's chair has lights embedded in the front wheels - they look awesome, but don't function well on anything but relatively flat surfaces.)
You got some high hopes and I think we should be able to help you achieve those!
Well I appreciate you helping him out as well!
Likewise brother! <3