I have been learning how all of my strangeness goes together to form a hEDS picture this year. Most recently I have had 2 dura tears repaired and am trying to get back up on me feet after a long period of illness.
The dislocations, joint damage and fatigue have very much immobilised me. This huge and fairly recent change in my life is what brings me to steemit. I am unable to get out much, and have given up work.
I had a seizure earlier in the year too. Dysautonomia has been a huge challenge. I am in Australia and am finding coordinating care or finding doctors who are aware of connective tissue disorders very challenging.
Steemit has been a sanctuary for me during this time.
I am glad to meet you today 😊
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