God bless you all! What a challenge, but you are strong. I don't know much about this condition, but will get more educated due to your post. I have a special needs brother that has been so much a part of our lives. Maybe someday I'll share his story. Take care of yourselves, and may you draw strength from those around you and those here in this community.
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These special people in our lives help make us better people if we allow it. I know that Luke has helped me become a better dad, husband and man.