I had never heard of Leontiasis so I googled it. I can't even image what you are living with. But you sound like you have a good support system in your favor. But I am saying prayers for you. I don't know if that helps you a stranger praying for you but it's the best I can do.
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Leontiasis is a progressive disfigurement and it gives me a disability in speaking and eating and that worries me a whole lot than I can imagine.
If you would pray for me then you are my angel @coffeetime and not a stranger.