Do their benefits really outweigh the risks and side effects?
Do they improve quality of life so much the negative impact is considered acceptable?
Those are constant issues in my ra and chronic pain groups. I took all kinds of stuff for 20 years and was always sick, in the er, in the icu, in the rehab, had infections, nearly dead, intravenous drips, - on and on. So I got off and now have all the other issues. But this is better for me.
supposed to visit SE Asia and totally chickened out
What??? life is so great here. 1000000 times better than the us for me.
Yes it's strange how some of us react. This is why I cannot leave fb. My groups have 1000's of active people that will chime in about any drug or symptom. I need the support and help.
I'm debating taking 2.5 mg of prednisone tonight and I will get good sleep and be a freak for a couple of days. I need to clean and carry my laptop somewhere, so I might. I cannot do either of those things at the moment with weakness. I have online friends who take 20mg 2X a day or more.
This is really interesting. I feel like biologics are something that a lot of people swear by for relief of their symptoms. But clearly that isn't the case with everyone. I'm happy to hear you have found a balance.
Yes... I looking back, I see this as one of the biggest mistakes in my life.
I was still able to leave FB. There are other ways to connect to life minded people. But if you enjoy the groups on FB I think that is great!
This is so interesting. Most people I know who get prednisone, feel amazing after taking a dose. Either symptoms end, or they get energy and feel more able and active. Like a performance enhancing drug. Though the effects are short lived.
Hey BTW, thanks for teaching me about "quoting" using basic html coding!!!
You are welcome. This is such a learning curve here! I get roid rage on prednisone. The first time I did not know and after two weeks on a high dose I was flat out insane.
Biologics can work great for years and then kill you in 24 hours. I have been in groups where the member got sick and the next day a family member came in told us the person was dead. I came close a number of times in my last years on them.
SE Asia is still here - you should make the leap. I am really glad I did.
Many of the most successful medications can have serious mood alterations. We had to monitor our patients for suicidal ideation. And some others cause irreversible movement disorders (like parkinson's). But that's what people are willing to accept when there are no other options for their illness.
You will be happy to know that, SE Asia has been re-added to my bucket list!