RE: I've been Steeming for more than a year, while my "real life" slowly slips.

I have a connective tissue disorder which effects any part of the body. It has caused wasting of my muscles over the past year when I was finding treatment for brain fluid csf leak. Eds deconditioning is a difficult thing to come back from, but I am determined.
I was previously involved in charity work which involved marathon running last year. Because I couldn't run anymore I did a head shave for the kids charity and to support my team mates. When they reached their $20k target I buzzed.
It didn't help my appearance as my health declined, but to be honest it was an improvement in the bedhead dreadlocks.
https://steemit.com/life/@girlbeforemirror/buzz-for-bravehearts