Hi Steemians, first of all, sorry for my mumble-jumble English for this post as I am not in a good state of mind. However, I figure I should update a little in case I was unresponsive to comments or slow to reply. At the same time, my worry has caused me to stay awake to watch his breathing rate, it is getting faster and faster.
So my husband and I had successfully kept Jansen clean for the past 3 years and 9 months from infection. Yay! When he was a baby, we were told he must not get any sickness because of his hypoplastic right lung. He is a right CDH boy so he has severe underdeveloped right lung. Therefore, we were informed that any respiratory disease could have landed him in ICU again.
With alot of ICU phobia and death-threatening fear, we arranged our life to be not ideal at all, so that Jansen would stay at home most of the time, just to ensure he was well-protected from any infection.
Recently his social development is kicking in and we figure we need to let him have some normal life too. To realise the world is made up of different types of people and of different faces. After all, he deserves to know how does a mall looks like, what is an escalator, how much fun he could have at the playground, so on and so forth. Sanitizer, disinfectant and wet wipes are our great companion wherever we go.
However, no matter how hard we try, as a matter of fact, germs are everywhere. And unfortunately he got it last Tuesday. It started with minor cough due to tonsilitis, but today the bacteria has entered his lungs due to his lungs' incapability to expel them.
We are at hospital now with him diagnosed with chest infection which doctors suspect is pneumonia. This is the day we wish it will never happen. Since Tuesday, I feared of this day. I wished it never come. But today, I reluctantly accept the fact that his lungs are still weak (as of now) and he needs medical intervention.
We rushed to ER because his oxygenation (or saturation) drops from 99 to 87. Immediately at ER he was hooked on to nebulizer as his lungs sounded croacky (well, I am not sure why were there frogs in there but that was how the doctor described the sound of his lungs). Then without hesitation, we were asked to be admitted.
IV line (in lay man term) is in. Doctors called it cannula. In my Malay language it is 'branula'. In my brain it is dracula.. Well thin sharp tube is inserted to the blood vein..I hope you know what I mean.
Then, suction to take out his phlegm. Oh yes, thin suction tube was inserted into both nostrils and also mouth right into the chest to suck up all the phlegm. Bad news, he needs to be suctioned every 4 hourly even when he is sleeping later.
All the above are meant to help him. But all I heard was my crying boy. But I have to purposefully harden my heart so that I can be toughen up. Emotion and feeling cannot have their drama now.
At the Emergency Room (ER)
This was how he looked like after all the crying and yelling.
At the pediatric ward
We hope everything will be cleared soon and we can go home to our home sweet home. Bless all the other 3 babies in the same ward - all are coughing badly, needing to be put on nebulizer and to be suctioned every 4 hourly. This ward is nothing short of crying sound and songs from mummies to console the babies and a child.
Thank you once again for reading my mumble-jumble. I hope to be back to my normal self soon to write out my heart's content for the readers here.
Till then, take care everyone & my regards to you.
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hope he recover fast.
Yes he will ;)
My hearts aches for both of you. I know it's super hard for you to rest, because even I would wake up few times to check on your updates. Hmm I'm so sorry you are going through this @iamjadeline. I know how diligent u and your family were to protect Jansen and seriously you all did an excellent job. Now I pray the peace of God to still come over both of you as healing takes place, proclaiming Psalm 91 and Psalm 23 as your realities more real than the challenge you are in. It's okay to just be who and how you are now. Take coffee or whatever that is needed. Jesus be both your Shepherd. Don't hesitate to let me know if need anything ya. Hugs 💕
I saw the word coffee here. You know me well! ☕ Thank you for encouraging words. ;)❤
I feel you.
Brave mom and dad ,your boy is in good hands and antibiotics are fighting off those bacteria.
Perhaps let the boy wear a surgical face mask when out and about from now on to give him some more extra protection.
You will have my prayer although in Taoist.
And Get rest in rotation.
Take care everyone
Prayer is prayer, sincere petition from heart regardless what field it is. Thank you so much @prch. He is wearing his bipap mask so won't be able to wear mask now. Yes I believe also he is in good hands. I show you, this mask, a small version of Darth Vader due to similar air sound.
he'll be alright soon. Take care everyone. Love.
First, I send all my love to yous and I will talk with our creator for yous and your baby. I understand how scary it is to be where you are. Just remember, as you know already, you have to remain strong for him. But don't forget about yourself. it's okay If you need to take a minute to cry if you need to. I hurt for you in my heart. I will be praying for strength for Jansen and for you and your husband. If there is ANYTHING I can do for you, please let me know. I send all my love and prayers.
Thank you @johndoer123 for the kind words. :)
Mummy jade jia you!
Thank you Michelle. :)
Stay strong my friend. Hope your son get better soon.
Thank you @verasj. :)
Don't be sorry! This post is a post from the heart! Prayers and love from us to you ya. You know we're here supporting you.... Hugssssss
Thank you Jo. Hugs. :)
I'm so sorry to to read that Jansen is not not in ideal health right now. Hope he recovers soon and you can all return home.
Yes same hope here. Thank you @branlee87.
You and your husband need to keep on stay strong and positive. You have been doing a very good job protecting him. Please take care yourself too, Jensen need both of you to stay strong..
Okie @kokuryo. We will take care. Thank you.
so much love to you, as the mother of a four year old I know where your heart is!!! Please let him get better and the other three babies there whomever above hears me!
Yes all the babies must be well. Thank you @mimulusamsterdam.
It must be tough for all of you there... I will keep my pray for Jansen~
Thank you bro @wilhb81. :)
@iamjadeline, while you had stayed strong along the way, keep staying stronger as this is the only belief you must always hold. God will make sure everything is getting fine.
Thank you @liewsc for uplifting words.
So sorry to hear about Jansen. From your post itself I can tell how suffered he is. My heart and prayers goes to you and little Jansen. You are indeed a strong mom. Take care
Thank you @viverridae. He is progressing bit by bit. :)
Dear dear @iamjadeline... I can only imagine the distress both of you are going through... I hope everything right's itself soon... Big Hug
Yes @kaerpediem. Doctor says he is progressing bit by bit. ;) Thank you so much.
prayers for your baby boy.. he will be well, i know he will.. God bless you.. stay strong and brave..
Agree with you, he will be well. Thank you @thebravesoul. :)
😊😊😊
Get well soon! Be strong mummy
Thank you @itrmarcusliew :)
We are all here for you.. just ask and we'll be there
If you all have doreamon pocket will be so easier. Thank you @orangila.
Hahahaha.... I would love to have the Doraemon pocket or Dragon Ball capsules. Welcome:)
Poor Jansen, hope he will get well soon!
@iamjadeline, you also should get some rest 😄
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Thank you @superoo7 for well wishes. And also for the tip.
Hi @iamjadeline! You have received 1.0 SBD tip from @superoo7!
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Stay strong @iamjadeline, am always praying for Jansen and I hope he recovers soon. Take care
I will stay strong as strong as Zord if i can. :) Thank you @zord189.
My heart feel heaving, but nevertheless we are praying for your family to go through this situation safe. Amen.
Amen amen amen! :) thank you @roselifecoach.🌷
Take care!
pray for him, heart pain to see little boy received this treatment. Hope he will recover soon. Be strong and positive mummy. Jia you
Thank you @janicechua for positive words. 💪
Wow, I feel sad about that :( I'm sure he'll feel the care and love you support him with! Wishing for his speedy recovery!!
Thank you @reconstitution :)
That is so sad. I am sorry to hear and see about this. :( No kid deserves this.
I wish you and your family the best of luck.
Really no kid deserve. I saw so many of them here suffering here in the ward. Heart sick. really wish all of them well.
It's heartbreaking :( Give my best!
So sorry to hear about this, get well soon Jansen!
Stay strong and take care, @iamjadeline
Thank you @dxn. :)
Praying along @iamjadeline... Blessings to you and family.
May the Lord's Touch and Healing Balm be upon Jansen! In Jesus Name. Amen!
Yes the Lord's touch and balm is needed. Thank you @coachmelleow. :)
Stay strong @iamjadeline. May God’s speed in your son recovery to full health soon.
Thank you @legendchew :)
Oh no! I am so sorry to hear that your little guy got sick! I hope that he will recover quickly and you can be home soon. It is NEVER fun when your kids are sick. I hate that helpless feeling. Blessings.
Thank you @apanamamama :) yes gotto stay strong.
I am so sorry to hear this ❤ thinking of your family, I hope he gets well very soon!
Thank you @karenfoster for dropping by with well wish. :)
My heart and prayers go out to you and your family. Poor little brave fellow. I hope he gets well soon and can return home where things are safe and his family love him.
Yes we are looking forward to going home. Thank you @cecicastor :)
All prayers go to Jansen and your family. Hoping he can be recovery the soonest.
Thank you @bboyady :)
I'll send up a prayer for your beautiful boy, and the other children in the ward.
Yes all the children need prayer. Thank you @powellx5. :)
Hoping that his infection goes away sooner rather than later. Sending you strength to be there for your family!
Yes all the children need prayer now. Thank you @supernovastaffy. ;)
Oh no hope he gets better soon! Poistive thoughts your way!
Thank you @crystalpacheco30 ;)
Sending prayers for you... Take care and stay strong... 💕💕
Thank you @ackhoo. ❤
I am so sorry for what your family is going through. My oldest had pneumonia and RSV more than once and for the first few years of life it we had our own nebulizer at home because we used it so much. You are a warrior mama! Sending a big hug!
Yes he is confirmed with RSV. result was out yesterday. :( however doctor did say he will improve bit by bit. Thank you @crowbarmama. ;)
Heartbreaking. Sending good wishes and strength to you all.
Thank you @fionasfavourites for good wishes. :)
Hope Jansen is still making good progress and that you got some rest, yourself.
God bless you and your family 😭😢
Thank you @annabellenoelle ;)
I know this has been such a scary and nerve wrecking experience for your family. I’m glad you were able to get him to the ER when you did. I’m praying for your handsome little boy that he starts to feel better and all of this clears up for him. Hang in there and remain strong for him, I know how difficult that is. I have experienced this same feeling standing by my child hoping and praying over him but only different circumstances.
It was scary past few days when he breathed so fast like 1.5 breathe per second. We were so worried his lungs will collapsed which happened before when he was at ICU after born. Good thing we sent him to ER on time. Now I am doing what you did - standing with him, hoping & praying. Thank you @crosheille. ;)
Wow that sounds so scary. Well you have others hoping and praying right along side you <3
Always here, if you ever need ANY help at all, i'm a phone call away.
Alright @zord189. Thank you for alway availing. :)
Sending healing thoughts to him and thoughts of strength for you and your husband. Nothing is more frightening than watching your child in a hospital. Hope he is better and back home with you soon.
Yes I was trying to shun the scary thoughts and keep focusing on the thoughts that he is going home. Thank you kay-leclerc ;)
Oh my goodness the poor little guy, he is in the best place for sure and no doubt an absolute fighter sending you lots of support and strength to your beautiful family and hope he is playing happy soon.
Hi @crazybgadventure, indeed he can play happily today. so happy! ;)