Havent been around much as having a hard time with this annoying Fibromylagia, spent the full day in bed yesterday sleeping, Hubby gave me breakfast at 6am then didnt eat again until 7 pm. Have no energy and everything hurts.
Its a horrible disease that takes over your body, i feel like i have aged another 40yrs, even turning over in bed hurts, thankfully I have a body pillow that helps support my arms and legs.
The most annoying thing is having to explain it over and over why you have had to stay in bed, why your ill again. .. people dont understand I'm not I'll again I'M ALWAYS ILL Fibromylagia doesn't go away just some days are worse than others.
I can't plan anything as I never know how I'm going to feel, somedays I can push myself to do things but other days I cant. I have to wait until I wake up that morning to know what I'm able to do. Then when I do get to have a day out you can guarantee i will suffer badly the next day.
That's me done for now, fingers are hurting. I'll pop in later to vote on your posts.
@len.george told me about you after he saw my video on Fibromylagia.
You are NOT alone!! I am right where you are and can relate to every word you have written.
I have stopped trying to explain that
and when people push me for an answer I get angry now......
and yes, each day is each day.
Just know I understand everything you just said as I live with it as you do.
hugs
Hi. Its not good is it, i am trying to muster I'll some energy to go in the shower, Feels Like i have to climb a mountain.
I have had enough of explaining my self to people, i tell them to search it, seemingly they know all about it. They make me feel worse.
I definitely feel you there. I have fibromyalgia and rheumatoid arthritis, and there are just days, sometimes weeks at a time where I can do a whole lot of nothing. Be gentle with yourself and take care. Glad to see you’re doing so well I’m here :-)
Mine is the same with the odd better day. Fed up of feeling so low and ill
Hang in there Karen, it will be a better day tomorrow.
At least you aren't running 60 Km with a broken rib.
You aren't that silly either.
Oh my I would be resting, that is a very very silly thing to do.
I'm trying to wake myself up, going to have to slap myself awake lol :)
Hmm m sorry to hear that @karenb54
I just know that kind of pain from your post n i search just now in internet,
You must be feel very tired all day, try to shower with warm water maybe it will reduse your tired.
Thank you, I am going to sit in the shower to see if it will wake me up :)
Yaa get well soon dear @karenb54
I have friends with fibro, so I know how hard it is. Hugs (very gentle ones).
Thank you Its horrible, i feel for your friends,(((hugs)))
:gentle hug:
I know that feel. The pain, the frustration of not being able to plan ahead cause your body is a douche. It's important to stay aware and not push yourself too hard. That douche of a body will make you pay if you don't. Mine does. Hard.
Thank you. I feel useless, its frustrating and pees me off. Wouldn't wish this on anyone :(
It's okay to be useless some of the time, especially when your body demands it.
My body is very demanding. I used to have control :(
You sound so much like me it's kinda scary.
I feel for you. I can't say I know it, but I've seen it from close range. I appreciate more than you know that you are here giving us what you've got. That really means a lot to me.
Thank you. Stupid thing stops me from living. Arghh
Sending you warm and gentle hugs. I'm sorry you are in such pain. :(
Thank you. Fed up of pain :(
Thinking of you.
Much Much Love!!
Hope you feel better
Thank you :)
I feel for you, Karen. Take your time and rest. Friends of mine tell me that is the best thing to do. Your body will let you know when it is ready. Real gentle hugs coming your way.
Thank you, i have to learn to listen to what my body wants :)
I'm sorry @karenb54 that you have to suffer. :(
Thank you, I would be able to cope better if I had a few really good days
So sorry you are feeling down with the fibromyalgia. Know it well had it for several years. My boss still thinks I am just lazy and don’t want to work. Some days are better spent in bed with a dvd on. Take it easy on yourself and know you will have a better day soon. 🐓🐓
Thank you, people don't understand and we get fed up of explaining it to them. They havent got a clue how bad we feel. Would love a few days with no pain, would be amazing :)
Thank you :)