My upvote isn't worth a lot, but I've followed you both and will do it often.
I've been dealing with chronic illness since my mid-20s, and social media (paired with medical-grade cannabis) has distracted me on a lot of painful sleepless nights. Aside from going to physical therapy and getting a really good psychologist, it's probably done more to keep me going than anything else I've tried. And as you guys know...you try everything.
I hate that this has interrupted your family's path. Sending up a prayer that you are able to find the right health care providers who can help you find a new, acceptable normal.
Thanks for the comment and support. It means a lot to us