I lost count of the number of times someone offered me a solution to this illness. While I do understand that their intentions were good, there is this lack of information regarding chronic immune diseases, and to the open public, this makes room for unnecessary judgment and unfair assumptions.
My immune system attacks itself and in long-term, the reality is grim.
There are a couple of stages of having an autoimmune disease that no amount of yoga or positivity can resolve it. Positive thinking, in itself, isn’t enough for my body to heal, but it does its job in comforting my mind so I can at least give credit for that.
It took me years to understand this cluster of features that this disease has to offer and there are still days when I fell trapped in second-guessing my symptoms. It's unpredictable and downright scary. One might call it a refined psychological torture when you keep hoping that you will eventually prevail. Finding myself poorly prepared for the prejudices that come and harm me.
When we talk about an illness that can be "manageable", the majority of people that don't deal with this, might assume that it's something that you can live by, something that will get better in time. At times, any rational argument I may have will be lost in the vast sea of magic voodoo cures. You spend half of the time trying to outsmart the disease and half of the time explaining to ludicrous people that eating kale, although healthy, won't fix the problem.
In my own mind, the plan is that the more detached and lighthearted I act, I will somehow bend the reality and instead of working against me, my body will work with me.
This may seem risky and naive, but I believe that if you are in agreement with your body, then you will know what works best for you. Taking one day at a time, one hour at a time and sometimes, one step at a time. Applying this principle in my life, worked in other areas and I guess only time will tell if this thing really is indeed beneficial or that my genetics have a dark humor and will come back to kick me in the shins when I least expect it.
Instead of wallowing myself in despair, I now treat this illness as a huge life lesson that will eventually kill me. I've seen better days and I've seen worse and in all honesty, I learned more from my bad days that from my good ones. Trying my very best to process negative feedback and learn from the experience instead of relying on denial and repression. The ability to shift from one mood to another, and just like building myself a safe system, I am trying my very best to adapt constructively.
I'm young and I'm battling a chronical illness and oddly, I feel at peace.
11-12 days seems to be the delay of reading each other's content. Or maybe I have seen it and put my mind in total ignorance mode. There are a lot of phases leading to final acceptance and I am on of those hanging in the fight-against phase. I can not accept the fact that our human race would not have made any progression in the last 30 years and i see clearly that progress of new ideas is blocked or sidetracked. Whatever, acceptance is the key to all wisdom and changes and at least you are at that highest level where the most magical things can happen. Wishing you strength, power and tons of healing love @szuri
Better late than never, my wise @bubke! I have received all your healing love and I am sending it back tenfold.
Hi @szuri
I guess that you are aware of your illness and that you can manage it.
Do manage it so it won't get worse soon.
Prayers for you.
God Bless and Keep you.
Thank you @cryptopie! I will do my best :)
...people will be people. I remember my friend going through treatment and on her birthday she got books on cancer topic for a gift. In what universe does that make sense....I do not know....but people will be people and you are you. At peace and gorgeous! :)
Thank you @atopy! If I were to receive that gift, I would have smacked his/her head with it! Rude..very rude! I hope your friend is okay now :)
I'm polite with whatever advice I'm given, be it good or bad but some people just love to cross some lines.
I can't speak for you, all I know is that every experience or emotion will tell you something about yourself, some of which you wouldn't expect, in the hope that you can find answers.
Thank you for stopping by @outtayourbox! I guess I need a complete guide to life's most essential skills in order for me to understand my emotions and gain wisdom from all my experiences. Regardless, there is still time for me and I will get my answers until my time comes!
Well the cliché is that wisdom grows with age right?
I guess we will have to see if those oldies are correct ;)
Having physical or mental illness sucks. What's worse is people who don't know what the hell they're talking about trying to say they know what your problem is, or something worked for them so it should work for you. Just keep on keepin on...
Upvoted and Followed.
Good luck with this.
I of course want to offer some advice in relation to a book to read but you're probably really tired of things like that so I won't offer unless you ask.
Okay? Okay. :-)
Thank you @as-i-see-it :) and thank you for understanding!
I do hope that book isn't The China Study by T. Colin Campbell.
You're very welcome. :-)
Thank you for your reply! :-)
Nope that's not the book. :-)
Wishing you happiness, smiles, sweet dreams and sunshine! :-)
Glad you're finally at peace with it my dear @szuri
Thank you @demostene! It took a while :)
Not to mention the ridiculing your-case-is-not-so-bad opinions :)) so i'm quite surprised you didn't even mention those.
And absolutely, negative feedback is indeed the best way you can get information in it's purest form, as tough as it is, it will (almost) never fail you.
Oh boy, don't let me get started on those type of people :)
having an illness of this nature is a lot of mental weight but once you accept the situation you learn to make the best of it and enjoy what parts of life you can experience for as much as you can experience it and just know that you no matter how hard of a life or short of a life have lived already a better one then others before and others to come after