A few weeks back I was in Denver for testing to figure out what was wrong with my lungs. During the initial visit before test the doctor was talking about a transplant. When I left the conversation was very different.
My lungs are still crappy but actually getting better. A lot of the issues are due to sleep apnia. Wow. I've been on a biPAP for about 6 weeks b4 tests and my CTs actually showed what was wrong before and after. Now my biggest issues are my meds and the side effects. I take more meds to counter the side effects of them then I do for being sick. The worst one is the prednisone. It's causing many issues and the taper down is very slow and hard from high a high dose.
I'll keep updating here.
get better!