We went sugar free and gluten free, even raw vegan. It eases up for a bit, then hits him like a truck. There are many different strengths of this disease. He said he wishes he has just kept moving. When you're sick, you lay in bed. When you lay in bed, you're spine fuses. Vicious circle. But we're here to share if you need us. Stay strong!
I will be doing updates. So far he's had methotrexate, Enbrel, and now they are recommending Remicaide (spelling might be wrong). He doesnt want to do any of it, but the Enbrel keeps him in motion. If anything else comes along, i will post it. Hopefully it will be a natural remedy! Best wishes
That one hasn't been offered to him yet. The side effects always look bad because of the legal requirements. My husband says it looks like Cimzia is about the same as Enbrel except the side effects can be more drastic. The enbrel has been a life changer so far. I wish we knew more about Cimzia, but if we meet anyone who has been on it I'll report back.
One more thought....my husband just asked me to tell you that he thinks he would still have his eyesight in his right eye if he had started the Enbrel sooner. The rheumatologist made him take methotrexate and prednisone first. The prednisone gave him osteoporosis after TWO YEARS so they put him on Forteo, which is terrible for someone with AS. Then the enbrel came along and he felt so much better. He went from 20 hours a day in bed to being able to be up most of the day. Medicine works differently for everyone, but he wishes he had started sooner on the biological.
We went sugar free and gluten free, even raw vegan. It eases up for a bit, then hits him like a truck. There are many different strengths of this disease. He said he wishes he has just kept moving. When you're sick, you lay in bed. When you lay in bed, you're spine fuses. Vicious circle. But we're here to share if you need us. Stay strong!
Thank you I will be doing many things to try and heal naturally see if I can but it gets harder every year for me
I will be doing updates. So far he's had methotrexate, Enbrel, and now they are recommending Remicaide (spelling might be wrong). He doesnt want to do any of it, but the Enbrel keeps him in motion. If anything else comes along, i will post it. Hopefully it will be a natural remedy! Best wishes
They want me to start injections next month cenzia or something like that I'm scared of the side effects
That one hasn't been offered to him yet. The side effects always look bad because of the legal requirements. My husband says it looks like Cimzia is about the same as Enbrel except the side effects can be more drastic. The enbrel has been a life changer so far. I wish we knew more about Cimzia, but if we meet anyone who has been on it I'll report back.
Ok thank you
One more thought....my husband just asked me to tell you that he thinks he would still have his eyesight in his right eye if he had started the Enbrel sooner. The rheumatologist made him take methotrexate and prednisone first. The prednisone gave him osteoporosis after TWO YEARS so they put him on Forteo, which is terrible for someone with AS. Then the enbrel came along and he felt so much better. He went from 20 hours a day in bed to being able to be up most of the day. Medicine works differently for everyone, but he wishes he had started sooner on the biological.