Hi Chapper, Thanks for finding my article 'cool'. 🙂 I don't really like to wax personal on Steemit, but this seemed to be a tangentially personal topic. It all worked out well mostly because of good fortune, but also because I had access to an internationally acknowledged specialist in pemphigus at NYU.
I'd never heard of Usher Syndrome, but looked it up. Apparently, this is a different Usher, Charles Usher. USFDA also characterizes Usher Syndrome as an orphan disease, as you indicate.
It took a little work to track down the Usher in Senear-Usher Syndrome. This is Barney David Usher. I'm sharing this with you because he has the unique distinction (!) of being the first Canadian dermatologist to have a disease named after him. This is the sort of trivia that might come in handy if you're ever a contestant on a TV quiz show 😁
I do appreciate your support, very, very much.
Have a great Sunday (which is probably almost over for you now) and a peaceful work week.
Warm regards,
AG
Haha, this is very interesting and yes it has the potential to be one of these game show trivia questions. When I win 1 Mio in a show like this you get rewarded!
Btw. I also try to prevent to get to personal here, but the people like it sometimes.
To support articles likes yours is my duty and honor at the same time.
Have a nice week
Chapper