Yes @denion ...
"... i really know more parents who gone through this process as well ..."
... very important. Very valuable!
During our own trial, we drew very close to a couple going through the exact same challenge we were facing with our son. Their little girl went through surgery first, followed immediately behind by our son. While told the odds and prepared for the worst, they both survived it.
Miraculously seven days later, we were able to take our son home. Driving down the hill from the hospital, a car raced past us going up to the hospital. While I don't normally notice such things, I looked to see who was in the car and had a sinking feeling it was this couple.
That night, they called us and asked how our son was doing. We told them how thankful we were for how well. When we asked how their daughter was doing, temporarily there was silence.
"We lost our little Diana tonight ..." Words I will never forget. Why do some make it and some don't? I do not profess to be wise enough to know ...
All the best to you and yours @denion. You and your family are in our thoughts and prayers, for we have been through it ...