#31 Diary of Remenzer : Ray Always Strong - This is Our Story Fighting His Severe Aplastic Anaemia Part 6

remenzer (63)in HOPE • 4 years ago

FOREWORD

Greetings, Hive Community! How are you doing? I hope you're all doing well. Before I begin, please accept my apologies for mass tagging. I'm tagging each of you because I wanted to express my gratitude for liking/voting on my post here, which has earned me hive bucks, which I've already used to cover my son's expenses. Thank you, thank you, thank you!

REVISE

It's been 241 days since we've had to deal with life's unpredictability. Ray, my kid, was diagnosed with severe aplastic anaemia. Every day is a fight to win, to survive, and Ray always bold, strong, and victorious. He will keep doing that. He has the greatest of friends and family by his side.

Aplastic anaemia is a condition in which the body fails to create enough blood cells. The stem cells that reside in the bone marrow create blood cells. Aplastic anaemia is characterised by a lack of all types of blood cells, including red blood cells, white blood cells, and platelets.

STORY TO BE TOLD OF WHAT HAPPENED TODAY

GOOD MORNING

It's 8:15 in the morning. I haven't sleep yet. I've been working from here.

Looking out the window is truly a gift. It makes my tired eyes and shoulder feel better.

Nothing else has the roughness and excitement that the guitar has.

This is how it looked from the inside.

That the window.

A MUST DO

Record of Ray's input and output.

Masa/Tarikh : Time/Date
Makan : Eat
Minum : Drink
Kencing : Urine
Berak : Feces
Muntah : Puke
Lain-lain : Others

The urine output cup is used to calculate the patient's urine output. If possible, urine production should be measured every four hours.

Wheelchair with toilet. The wheelchair's basin is in the toilet. I'll put it under the wheelchair if it's necessary.

HIS CURRENT STATUS OF CARE

His nose infection appears to be improving. His nose began to improve after few times of nasal endoscopy procedure.
His blood reading:

Hemoglobin : 10.2
Platelet x 10^9/L : 9
TWBC x 10^9/L : 1.0
CRP : 176.4

After his nose infection cleared, the value of CRP dropped dramatically, from 370 to 176.4. After two months of everyday fight, victory has been achieved.

The next treatment will be focus on Immunosuppressive therapy (IST) with antithymocyte globulin (ATG). Hopefully, everything goes smoothly.

THE CHALLENGE

Fever

His fever does not take a break. He was given paracetamol every 6 hours, sometimes 4 hours if the fever came on earlier.

Vomit

He throws up 2-4 times every day.

The worst. Hmmm

Bleeding gum

Less Appetite

Fried mee with fried eggs is all he wants to eat. Thank you so much, Ray! He just eats once a day. He had lost his appetite and was unable to eat more than once.

DARK SOON

He usually falls asleep till midnight after finishing his lunch and midday medicine.

Meanwhile, I take care of the cleaning.

I'll wait until after 6 p.m. to walk down to the kiosk and buy the that food Ray requested.

I'm less likely to be exposed to pathogens if there are fewer people around.

As he requested, I bought him fried mee and eggs.

I need to take a bath and clean myself in the room next to that door before entering his room.

IT'S NIGHT

To get me moving, I need coffee. Coffee without sugar is the best!

The bitterness of the coffee is similar to my face.

MID-NIGHT

It's almost midnight, I had to wake him up for the medicine

That's the mid-night routine.

He's going through his messages from his mother.

Two down, three more to go.

After done with the medicine, it's time to clean his teeth and mouth.

Mouth set cleaner ready.

It's 1:46 am. Time for him to sleep, again.

Meanwhile, me, getting ready to create a new post. Which is this post.

Did I tell you about his fever?

I also help out as a nurse. He does not want the reading to be taken by the nurse.

THANK YOU

By the time I finish this post, it's already morning here, now I working on the appreciation list. The typed list will be presented first with this post, the handwriting (still work in progress) list will come sooner. Thank you so much for your time. Thank you so much for your upvotes. God Bless you.

LIST OF GRATITUDE

@ocdb, @ranchorelaxo, @azircon, @haejin, @ocd, @vancouverdining, @acidyo, @brofi,
@kevinwong, @ecency, @smartsteem, @therealwolf, @howo, @usainvote, @postpromoter, @zuerich, @thebluewin, @tipu, @bdmillergallery, @traciyor, @softworld, @dandays, @saboin, @dcommerce, @justyy, @steempress, @ocupation, @deepresearch, @french-tech, @ashtv, @chekohler, @roelandp, @kohsamui99, @eonwarped, @laruche, @wiseagent, @hatoto, @minnowvotes, @barge, @ocd-witness, @inb4, @certain, @rodrook, @spydo, @jamesbattler, @ninahaskin, @jeffjagoe, @ammonite, @ausbitbank, @blockchainyouth, @cetb2008, @lisbethseijas, @stevenwood, @robmojo, @maxwellmarcusart, @arcange, @teesart, @tombstone, @foxkoit, @smartmarket, @crosheille, @mintrawa, @outlinez, @xyanthon, @lauramica, @guruvaj, @ackhoo, @straykat, @kunschj, @voinvote2, @hesoyam, @fiveboringgames, @boatymcboatface, @walterjay, @tamaralovelace, @gabygonz, @rem-steem, @nathyortiz, @ninnu, @citimillz, @iansart, @cmplxty, @psychkrhoz, @discohedge, @tomaszs77, @nicollefiallo, @bil.prag, @ericwilson, @arabisouri, @oivas, @bliss11, @almi
@good-karma, @dhedge-drips, @titusfrost, @petrvl, @aljif7, @arrliinn, @ayrin344, @optout, @plantstoplanks, @pitboy, @sanderjansenart, @ganjafarmer, @monster-one, @dinglehopper, @detlev, @miketr, @mrf83, @vvgm, @damoclesart, @d-zero, @isabelpena, @cheese4ead, @iamsaray, @lightpainters, @moyse, @manniman, @archon-drips, @johneyreacko, @olivia08, @olumzy, @imtase, @yashny, @mariajcastro28, @topclean, @maeugenia, @marytp20, @keco, @mcedric, @santigs, @blackberryskunk, @creativemary, @millyzev, @darthnava, @hive-113748, @jagoe, @velinov86, @xmauron3, @artistparthoroy, @juecoree, @chanych85
, @macchiata, @esteemapp, @javilinares, @kaminchan, @tmholdings, @binkyprod, @felt.buzz, @aunik, @fenngen, @kenechukwu97, @playfulfoodie, @desireeart, @dudeontheweb, @futurecurrency, @angeli-b, @miguelaag, @onyechi, @seckorama, @vixmemon, @abhisheksss571, @crystalhuman, @megabot, @pacolimited, @teenagecrypto, @mllg, @theshell, @yourtop3, @konti, @pvinny69, @constgaladriel, @iptrucs, @shadonchandra, @thethreehugs, @jhoxiris, @solymi, @tommyl33, @argeh, @romirspc, @akumagai, @francyrios75, @hectgranate, @nobutsd1974, @shainemata, @dante31, @dcrops, @maxuvd, @abdulmath, @elderson, @josebenavente, @mammasitta, @pladozero, @wittywheat, @zeusflatsak, @fernandosoder, @rezasofyan, @titofit, @afterglow, @casilokodesing, @miroslavrc, @mrarhat, @gabrielatravels, @kryptik.tigrrr3d, @heypuch, @kryptogames, @maleklopez, @mercurial9, @olebulls, @soufianechakrouf, @soyunasantacruz, @syh7758520, @asuk4, @jayna, @kawsar8035, @mister-meeseeks, @redrica, @rubido, @aaalviarez, @barbibsq27, @mariblue, @suzana72, @lotto-de, @venus2203, @berthold, @funnel, @hiveshout, @pallab, @allyson19, @gloriaolar, @hive-143869, @jlsplatts, @kriang3tee, @travelingmercies, @yadamaniart, @desro, @erikaflynn, @giocondina, @malkoo45, @mamun123456, @mejustandrew, @photographercr, @shinoxl, @belahejna, @davidesimoncini, @good.game, @joshuabbey, @anarcist69, @discernente, @kimzwarch, @megusta, @nicanor-mosquera, @steemitboard, @thelogicaldude, @hivelist, @kapitanrosomak, @kingscrown, @osavi, @yohadvartse, @konradxxx3, @koxmicart, @mobi72, @noemilunastorta, @nutritree, @planetoceana, @roomservice, @varunpinto, @ahlawat, @alkemix, @baiboua, @catinthewindow, @divinekids, @dpend.active, @indigoocean, @khiabels, @krisbelfigarella, @master-lamps, @orlev, @the100, @twoitguys, @warpedpoetic, @anafae, @anusrimollick, @bobydimitrov, @dzoji, @felixgarciap, @investinthefutur, @isgledysduarte, @maddie30, @nicxi, @nightportraits, @obsesija, @pboulet, @serialfiller, @sportsfanboy, @travelwritemoney, @viviehardika, @zedikaredirect, @acousticsteveo, @bosco56, @eve66, @hasi00, @hive-169313, @hive-180164, @leveluplifestyle, @ummar, @uncleboy, @upfundme, @alinares, @drawmeaship, @elpatoverde, @fatman, @fengchao, @ilpaso, @ivangeevo, @kattycrochet, @makhzar, @mildred271, @numasi, @parauri, @ufm.pay, @yiobri, @amirl, @athomewithcraig, @athunderstruck, @drader, @eglois, @epicdice, @face2face, @farleyfund, @gudnius.comics, @gunnarheilmann, @hanggggbeeee, @hasan706, @investyourvote, @javyeslava.photo, @jimre1, @kyleana, @smh01, @squareonefarms, @stickupboys, @suntree, @suzn.poudel, @thatsweeneyguy, @wolfofnostreet, @zeesh, @adevieka, @adysscheryl, @asia-pl, @beerlover, @celinavisaez, @duke77, @kellyane, @madefrance, @memesforhive, @myword, @neshk, @norberto1, @noreen, @paopaoza, @sarakey, @ssiena, @tawadak24, @variedades, @antonireviewer, @ayushthedreamer, @azwarrangkuti, @dandelionfluff, @drhoofman, @dwixer, @esther-emmanuel, @folakere, @icuz, @kennyroy, @marriakjozhegp, @martial.media, @newsnownorthwest, @oladunmoye, @oscarcampos86, @paolasatenea, @puza, @ricardo993, @savvyplayer, @schneidy, @shikika, @steempower-001, @tomatom, @treetoptennis, @valthy, @yuza, @alovely, @an-man, @auminda, @danieldrawing, @danieli98, @dappstats, @dragokazo, @edprivat, @francosteemvotes, @goddesseva, @inpursuit, @ma1neevent, @maureenedwards, @medussart, @nadhora, @nante, @originate, @projectmamabg, @raphaelle, @ravthijo, @rickardoh, @rocya, @sachingeorge, @sn0n.dev, @ykretz, @aidefr, @andreasl187, @anri-avgustino, @basterundco, @cabalen, @charcoalbuffet, @charleswealth, @cjsean, @critic-on, @cubapl, @cynshineonline, @davidpena21, @ecency.stats, @effieoutside, @esteem.app, @eudomarplay, @genesisojeda, @getron, @ghaazi, @glstech, @greendo, @guada1, @hrcl.art, @iameden, @jacuzzi, @jalentakesphotos, @jerichternida, @kaywoods, @kharrazi, @kingkinslow, @mengene, @mercmarg, @mightyrocklee, @monster-retos, @nioberojas, @nurhayati, @panconcajeta, @paolazun, @pursuant, @r00sj3, @rappler, @robotics101, @sorprendente, @theithei, @vaporrhino, @voinvote.token, @volkiceper, @wallytiteuf, @zoeanavid, @abbenay, @aiovo, @alandesign, @alex07samir, @alexsilvera, @alypanda, @ambrosechappel, @amphlux, @angelanichole, @as31, @audiarmisg, @babeltrips, @bartheek, @bbarquitectura, @beerlotto, @bellou61, @berien, @betbet, @bidnat, @bouncerjunior420, @bubblingwells, @coinman14535, @cryptogambit, @cryptokingzno1, @cryptovial, @dannychain, @debilog,
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@micap12, @mohammad12kh, @mrwang, @nadirali, @neove, @noor-badshah-786, @oleg326756, @oscurity, @papowich, @paulo.sar, @powpow420, @rdst, @reginacatajay, @renataboreal, @showtime, @skepticshakeel, @solarphasing, @soychalbed, @soydiegorojas, @spirall, @sportschain, @steembatangas, @steemitcanarias, @steemmedia.org, @steinz, @stickupmusic, @stonergirls, @strumcoach, @taniagonzalez, @teamoregon, @teampdx, @ten-years-before, @timmypat, @vaishnavi24, @watt.the.watt, @worldwildflora, @yayogerardo, @yuslindwi, @zekecuba, @zonguin, @ahheus, @akioexzgamer, @alex-hm, @amsnoopy, @andimywapblog12, @andres03, @angelga25, @auracraft, @bahrizul, @brahmaputra, @brankobit93, @catajay.vstore, @cribbio, @crypto.story, @dashand, @duekie
@dwipp31, @eswengshen, @freevoluntarist, @gaottantacinque, @gasaeightyfive, @gmw, @heneyko61, @hibachibeast, @icarri, @irisworld, @irynochka, @jklio123, @junnel123, @kyawminoo, @leynedayana, @lezzie, @lindac1992, @makeup.byidy, @masanayee, @mgsoneaung, @mintawa.app, @nalexadre, @nj07, @olddessauer, @ononiwujoel, @panprezes, @pantsulachain, @peakd.top.d001, @plint, @podewils, @polaleye97, @rebeysa85, @reza-shamim, @rotzank, @rsntpl, @samuelvoncocceji, @santigo, @schindmaehre, @shahab021, @shankaru, @siniceku, @sondershausen, @steementertainer, @steempeer.app, @stefen, @suviksha, @thaet653, @tips.tracker, @udeesther, @univers.crypto, @valencreart, @wackyme503, @watchlist, @ycarola, @zdigital222, @zulbahri, @hypnochain

#life #ocd #motherhood #photofeed #palnet #hive #proofofbrain #gems #aplasticanaemia

4 years ago in HOPE by remenzer (63)

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ahheus (53) 4 years ago

why was i pinged

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6 votes

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remenzer (63) 3 years ago

I already stated why.. I hope u read a post before voted it in the future.. btw Please accept my apologies for pinging you in this post, it won't happen again..

Greetings, Hive Community! How are you doing? I hope you're all doing well. Before I begin, please accept my apologies for mass tagging. I'm tagging each of you because I wanted to express my gratitude for liking/voting on my post here, which has earned me hive bucks, which I've already used to cover my son's expenses. Thank you, thank you, thank you!

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2 votes

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sachingeorge (64) 3 years ago

I'm new to hive can i know which tag did you use to copy paste text like this

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bdmillergallery (76) 3 years ago

Hello @sachingeorge 🙂

Just use the “ above in the key that precedes this text field or place a > in front of the text you would like indented. When you do it looks like this…

test test test

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sachingeorge (64) 3 years ago

What is the use of that tag ?

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ahheus (53) 3 years ago

ok no need to be nice with me im a redditor

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dandays (72) 4 years ago

You're doing great, he's lucky to have you. You're very welcome. Apology isn't necessary, tag me any time.

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6 votes

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remenzer (63) 3 years ago

Thank you for your kind word @dandays. I wish you all the best.

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rebeysa85 (61) 4 years ago

I'm not much of a prayer but I do hope your son gets better and that you keep finding strength to fight for him.

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5 votes

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remenzer (63) 3 years ago

Thank you for replying to such an encouraging word @rebeysa85. Thanks for the hive you give to Ray. I make sure it will only be used for him.

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rebeysa85 (61) 3 years ago

No worries! I know what is like to be in your position and I'm glad to be helpfull to others in need. Now you and your boy have a friend in Venezuela. Keep us posted of his recovery!

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mobi72 (67) 4 years ago

Reblogged for the more reach. May God bless your son with complete good health, no parent should be seeing such time.

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2 votes

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remenzer (63) 3 years ago

Thank you for the vote, thank you for the reblog, thank you for the pray @mobi72