My eye doc is awesome. I wish all doctors treated me with the respect that he and his staff do. It's not that he does anything special per say but he always believes me , never questions my experiences or symptoms and doesn't judge me and my conditions the way 99% of other health professionals I have seen do (getting really tired of the eye rolling when I tell healthcare professionals I have POTS /ME/fibro etc). I would have already gone but wasn't well enough to leave the house. This week though I should be good. :)
Not so funny story, I've had pots since childhood, 30+ years now. With cyanosis so it's super obvious (or should be)something physiological is going on. I wasn't diagnosed until about 3 years ago (even with fainting and few ER trips for the injuries from fainting). When the med tech/ nurse takes my HR and BP they always , and I mean always say "must be white coat syndrome" in a joking mocking manner. Doesn't matter where I go. This has happened for decades. Now I correct them and tell them I have POTS they eye roll, or have no idea what I am talking about then eye roll when I explain it. Even if I did have white coat syndrome, that's pretty cruel to mock it. I mean mocking someone's anxiety will probably make things worse (I don't have anxiety though)
The funny thing about that is I worked part time at a university as a standardized patient for several years. If I actually had white coat syndrome I wouldn't be able to do that job.
It's too bad there are so many people in the profession who think they know it all and fail to really listen to their patients. White coat syndrome is more common with hypertension than most anything else, I used to get it myself!
Thank goodness the last few years more people have become aware of POTS because of the COVID vaccine. The worst vaccine ever made in my personal humble opinion! I hope they can help you out with the double vision though, you never were diagnosed with MS I hope!
The MS thing is...complicated. It's a bit up in the air and especially with the drop foot and weird vision going to be explored again (this time with good health insurance). I don't fear MS as I already have ME which is just as debilitating but there are no treatments. Not just my opinion check out QOL studies . There have been several that came to this conclusion as well.
An MS diagnosis would be a game changer for me, if that's what it turns to to be because I will actually have treatments and be taken seriously. I have negative ANA but so do about 25% of MS patients so, that in itself is not as much of a ruling out as I was lead to believe . When I had optic neuritis they stopped at negative ANA and did no further tests. I also received no treatment for the optic neuritis (I'm not sure what that treatment would be).
Decades of medical neglect have left me too sick to seek care and when I do it's just one specialist sending me to the next one with no answers or treatment.
So yeah it's complicated to say the least.
There is a bunch of tests that should be done with O.N. diagnosis, and ruling out MS is a big one. Hopefully they can find some treatments to actually help! ANA is a very non specific test as you already know. That sucks to be going through that, hopefully your Ophthalmologist will at least get that double vision cleared up.
Today I ended up posting on Leo, because ecency was acting weird with my pictures. I tried the boost thing again and denied! That makes me 0-2, oh well. I'll figure it out yet...
I hope you're feeling a little better today!
You got SBi from freecompliments though so that's good :). ecency is hit or miss on upvotes at times. Some of your posts have been boosted, so it is possible. :)
I'll give it a shot again tomorrow, I might get lucky yet!
You tend to have better luck if you post on ecency itself but yeah it's complicated. You can always promote your post though.
Tomorrow I'll try posting on ecency again, its's not a easy as PeakD or Leo I've found so far.