You are viewing a single comment's thread from:

RE: It's Worse Than it Looks

Has anyone told you lately it's nice when you stop by? I cracked an upside down helicopter joke on your daughter.... :crickets: 🤷🏼

When we left Long Beach in 2017 it was still acute. Every time we get checked out now it seems like it won't stop progressing. She's been stabbing her fingers the last few weeks so they can diagnose whether or not to start insulin.

Insuwhat? We never mentioned that word a month ago. Everything is accelerating so fast. Prayers.

Oh trust me she's not a fan of antibiotics. With the enzymes and probiotics and everything she has to take regularly it kinda starts everything at the beginning again.

Thank you.

💖

Sort:  

hahahahaha she was working all day today and then went to a costume party -i want to show you her costume and my son's so badly!!! but she will probably want to post hahahahaa

but they looked FABULOUS!!!!

SO - ok - i wasn't sure how fast its progressing - but that's how it went for my friend too. They told her all kinds of things and her husband wasn't having it. He found a doctor in Moscow (they are Russian) and he told them - she will be fine - we just need to take the pancreas out - no need for chemo and radiation.

so they did that. and she is doing well today! (this is...8 years ago)

and get this - they couldn't have any more children after their daughter (who is now 20)

and about 1 year later - she gets pregnant. She was like huh?!?!?! husband was like huh?!?!?! LOLOL

she is now the FIRST woman in Russia to have a baby after getting through all her pancreatic stuff! hehehehe

she was on the news and everything :)

so - if you don't like your doctors now? GO FIND AMAZING DOCTORS to get you both through this. Seeing as how healthy she is - you probably have great docs!

I am already praying - as soon as I read the post I started. Please tell Pura!

That's why we need to get back to England. She's British. As of now it's looking like maybe we'll get outta here March'ish.

Are you sure it was her pancreas? We're reading now. It's such a super advanced procedure that requires the patient has cancerous glands to be considered. But even then only portions can be removed.

Find that out for us if you can. It's super advanced and would then require manual insulin all day and manual enzymes all day. Those pancreatic enzymes (Creon) are like $9/each here and she can consume up to three/meal. I can't imagine how daunting it would be to check blood levels that regularly. Your friend does that now too then yeah?

Take your time. I'd like to know what you know. 💖

100% it was her pancreas. Hers developed into pancreatic cancer - FAST.

like fast fast. scary fast.

She is now like a diabetic, and on insulin - no sugar - all that.

but living a totally normal life, no chemo/radiation. just removed the inflamed pancreas - and now she's fine.

Thank you.

That's as advanced as it gets. Patient has to be life and death cancer to be considered. How long ago did she do that? Are you aware of the survival rate?

I'm glad you responded.

Well - for her, it was.

She was feeling sick for a bit. stomach not well, burning i think - and constipation too i think (i'm just gonna tell it all here cuz i just want Pura to get the help she needs so what am I gonna mince words for -right?)

so she went to the doctor - and the doctor literally told her, get your house in order. you have 30 days.

That's when her husband told him he's stupid and he's supposed to be a doctor - get her the help she needs.

He looked all over - found a doctor in Moscow (15 hours from their village) and that's when he said - we can operate.

but it went from pancreatitis to pancreatic cancer so fast.

and I know that if you find it quickly - you have the best chance.

So - just.. rule OUT pancreatic cancer you know?

but the fact that she has gotten so ill so fast - and she is normally in such good health... I'd say just get her that clean bill of health to be sure right away.

She has to have MRI's every 3 months. It sounds like you're about as familiar with the disease as I am.

How long ago did she have that procedure?

i think August of 2013