The struggle is real. I need to start writing.
It's been about three weeks since I've started posting. I haven't posted often enough (more like once in every 5-7 days) but it's mostly because I've gotten lost (or immersed in - take your pick) trying to find out what I could about how the steemit ecosystem worked. By doing so, I found out that my original intro could be viewed as shady. Yup! Apparently, I could be a bot posting (or not) away in the platform. And now I can hear a high-pitched voice in my head saying: Don't forget the picture! Even if it's a few days old. ahem ahem
So, let me try this again.
My name is Kris. No, not really. But it is part of my name. I'm named a little oddly so let's just go with a portion of it for easy reference. I've already previously written about how and why I came to this platform. It's approaching TLDR-ish but if you're curious enough, good luck reading it!
I was initially unsure about a niche but found that my history covers poetry (1, 2, offsite oldies) a lot. I will keep posting poems and will also start writing stories to flex my imagination some. I did post a semi-rant/tip about stress. So if you're ever crazy... I mean bored enough to follow my journey, you'll mostly see life experiences with a mix of tips or realization, poetry, and stories. But who knows? I may just surprise you. Also, if you find the writing style varies from one post to the next, then you're right! I'm weird. Unless of course you thought it's a multiple-authored account. But nope, I'm simply unusual that way.
But wait! There's more...
You might also get to read about my permanent life-buddy Myasthenia Gravis which I've been diagnosed with about a decade ago. It's not going to be a rainbow post but hopefully, if they ever get read, it'll be a look at how a rare disorder can be such a candy. Yeah, with the diabetes you get and broken tooth and cavities and chance to choke to death. Yup, not fun at all. But it weeds out the true friends from the shi- I mean the shiny fakers. So, if you're down (or high - not judging) for that, swim the steemian ocean with me.
Still there?
I'm guessing if this ever gets read, it'll be mostly newbies reading it. Hello, new steemians! (waves frantically) Welcome to Steemit! But back to the point - mostly minnows like me. Because you've read this far, let me give you a nugget of cyber gold (advice not cryptocurrency :P). I know it's overwhelming but here's the tip I've learned: interact with other steemians and it wouldn't be so daunting to venture into this world. I found PAL and it's been adding vibrant colors to my stay thus far. I encourage you to drop by and say hi. Who knows? You could be meeting your future life-long friends there. I hang-out mostly in the #quiet-room and I've met awesome people there - @creativesoul, @discordiant, @elew, @sammosk, @ragequit - to name a few. Come stalk me there. No, I'm kidding. Stalk @sammosk or @discordiant there. They'll help you with registration and whatnot.
Why is this becoming a non-self into?!
Because I'm weird that way. Welcome to my world. Just because it seems customary, here's another picture. It was taken a month before I decided to cut my hair but hey, it's tied up there so I guess there's no difference. Excuse the lack of smile and the partial eye droop. And the bedhead. I'm ecstatic to be here but I'm Myasthenic so it's like having botox on your face without having to have needles poke you like you're a pincushion. So yes, I don't smile much but when I do, I don't. Or I look like I'm fake-smiling-it's a-pain-to-smile-at-you or like I'm about to high five your face with a steel chair. So it's a resting and smiling bitch face problem, too but I don't bite. Except when my meds are in full swing. I can smile some and not have eye droops. No, I still don't bite unless you're food. So...
TLDR?
No, way! I suck at summaries. Drop me some love? Here's a cyber fish food and let's steem on! Or it.
Welcome and Thank You for being with us!! Following your Blog now
Thanks for the welcome. Still settling in and hopefully, I can stay a long time.
kumusta kris! welcome! chat later on teamPI sometime.. :) following u and upvoting.
Salamat. I'm parked there. Just send me a DM when you're up for a chat :)
Hi..I can't vote on your post now but here's a delayed WELCOME :)
I don't know much about myasthenia gravis except it's a muscle weakness right? Can you post your experiences and tag it as it is.. Myasthenia Gravis. I've come across it in school and at work but i have no interest in Neuro, i'm mostly cardiac as a nurse. Your posts will be educational if not informative for health professionals as well as patients and their relatives.
That's alright :) I still appreciate the welcome. Thank you :) Yes, it's a disorder involving muscle weakness. And wow, cardiac nurse! Must be quite toxic considering cardio-related diseases are high up on our country's morbidity list. I'll have to consider posting about MG because the one time I did (on another blogging platform), I had a friend criticize me a bit over how my experience with the disease was depressing. Needless to say, I avoid getting deep into discussing it unless someone explicitly asks me to tell them.
Oh..we can't control how members will react to any post here, but i have seen a lot of depressing stories, some experiences, poems etc. wala namang problema so far.
Thanks for the assurance :) I will try and post something about it next week after another hospital trip. I might have to organize my thoughts/experiences so they're easily understood.
How often do you go? Injections??
Depends po on my condition. There were times before that I'd be in a hospital weekly. Like I'd get discharged and then a few days later, I'm at the ER again and ready for admission. January this year, I was there weekly. And nope, I had the pulmo check up just last month for the flu vacc which I was strongly advised to get yearly (I have pneumonia vacc every 3-5 years). This time, it's an overdue follow-up with an oral surgeon. Dapat po nung feb but I frequently had some minor flare ups so both the neuro and pulmo said no muna for any procedures.
Am a nurse but i dont advise vaccinations. People become unwell with them. Am not saying you musnt have them.
Hey, Kris. The other day I was wondering what your name is!
I thought for sure you must have told me and I forgot.
Hope to see you in the Quiet-Room and around Steemit when our timezones allow.
Looking forward to your poems and stories!
Thanks. And I think I'm one of the few who didn't have a proper intro post yet, until this one that is. I'm glad I caught you there today, though only briefly. I hope you don't mind me linking the room and dropping your name here, too.
Hello again! :)
Hello :D
Welcome, hope you have a great experience. It's awesome here.
Thank you :)
Welcome to the community.
Thank you! And pinoy? O.O
Yes I am :). Are you?
Yup. I haven't explored our side of the community yet as I've been struggling with the info-dump. Glad to meet a fellow pinoy!
Galing. Baka may maitutulong ako, tanong mo lng :)
Haha buti naman marunong kang magtagalog. Akala ko kasi laking ibang bansa ka na pinas ang home country. Salamat ng marami. Aasahan ko yan! Meron akong nakita kanina na channel pang pinoy. Kanina ko lang din nalaman. Kakabaliw kasi may sariling ecosystem dito kaya basa basa na lang ako tungkol crypto mga ganon.
San ka s pinas?
upvoted and followed! :)
Salamat, kabayan :) followed back. silipin ko blog mo bukas siguro kung di ako mabulyawan. Ginigyera ako dito dahil ke steemit eh hehe
Congratulations! This post has been upvoted from the communal account, @minnowsupport, by unspeakableme from the Minnow Support Project. It's a witness project run by aggroed, ausbitbank, teamsteem, theprophet0, and someguy123. The goal is to help Steemit grow by supporting Minnows and creating a social network. Please find us in the Peace, Abundance, and Liberty Network (PALnet) Discord Channel. It's a completely public and open space to all members of the Steemit community who voluntarily choose to be there.
If you like what we're doing please upvote this comment so we can continue to build the community account that's supporting all members.
Welcome to SteemIt (again?).
Have an upboat! The waves can be rough but you are ready.
An army of PALs at your back.
We chugga chug into a glorious future together.
Journey well fishyfriend. <3
Thanks :) I'm so lucky to have met you and be in PAL. And thanks for letting me point a finger at you >:D
Lets do the Hokey Pokey pokey <3 dances
Someone's happy lol. Remember this for when you start getting flooded.
Hi, Kris,
I'm very glad that you're here, and I appreciate your interactive comments when you visit my blog!
I'm sorry to learn of your affliction with Myasthenia Gravis, and I hope you're able to find effective ways to cope with it.
Welcome to Steemit! :D
😄😇😄
Ah! The gif of achievement! I try to catch all your posts as I really do enjoy reading them. I just wish steemit would put a separate tab for resteems (I do read some that catch my eye) as my pc won't load the rest even if I try scrolling through them. But I digress. Thanks for stopping by my blog to welcome me! I'm here to try and cope with MG, hoping that the interaction and the writing could de-stress me a bit.
HAH! Nice one xD
Welcome to steemit, nice to see you've finally mustered the courage to post this :D
The post turned out great, it gives us a nice view of your awesome personality!
Cheers!
Thanks lol. But I'm guessing you're alluding to the steel chair line!
I like the "all over the place" thing that's going on! xD
LOL just because you get me. So there, I listened and didn't compare. Thanks, bud!
Welcome to steemit !! Enjoy this beautiful world! Followed. Follow me back 😘
Thanks :)
My mum has had Myasthenia Gravis for over 30 years. It's an always there thing that you're never quite sure when it's going to poke it's head up and say "oh, by the way, you aren't going to talk without slurring for a week, and that swallowing solid food thing? yeah, not happening."
I didn't realise until recently just how long ago she was diagnosed, because around the same time I was in and out of hospital being tested for 'unknown illness #1', which after 3 years turned out to be Crohn's disease and my parents did a great job focusing on treating me and hiding that mum was even sick.
Enjoy your time on here. I've given you a follow and upvote :)
Thanks. I'm getting teary-eyed. I'm so sorry to hear about your mom and you. It's a downright shizzy thing to be sick - whatever sickness it is. But to have it stay with your forever, it's just effed up. I can't even think of how hard it must be for everyone in your family. Stay strong. Come talk to me in PAL? We're just there. I've linked the pages.
I'm pretty new here. Joined to help out the war effort and to hopefully provide some kind of outlet for my food writing that could earn me money.
I haven't looked into the related chat stuff yet, but if/when I get onto PAL I'll seek you out there.
32 years with Crohn's, just passed 23 years with a bag and being on the DSP. It used to be easier, but I'm working on making it better for me at least, and hopefully others
Followed you so I can keep an update. And because I love food even before I had to go on prednisone. Sorry to hear it's been that long since your battle started but cheer up. You made it that long. I'm not on any disability aid so I have to do some freelancing. I'm here because of a long story which I linked up in the post. Let's keep on surviving!
When you get there, come hang out with me. Stay strong! Send my regards to your family, too.
prednisalone and cortazone (sp?) are 2 things I'm quite glad to be free from. I took one or the other for about 10 years before they were no longer useful treatments for me. Mum's been taking variable doses for pretty much my entire life and it's possibly part of the cause of problems she's got now. Hopefully you're doing well with your battle and don't have to fight with centrelink to survive. Being able to freelance is certainly useful at helping to prevent that though.
I'm fairly resilient though and my happiness levels are pretty decent considering. I've long been of the opinion of at least keeping on surviving, sometimes to a point that my friends have said I'll outlive them all. So far, so good
Prednisolon and cortisone. I'm on varying doses of prednisone (among other meds for MG and various other conditions). It's harder to be perky when your meds are actually documented to cause depression among other mental health issues. But I'm desperately, desperately trying to claw my way out and still believe in fighting. I hope it goes for you and your mom as well (especially her as I know prednisone itself can be a fucked up shit - sorry for the language but there's nothing else to day).
I very much understand the 'I got nothing else today' thing. Depression is horrible. Keep fighting the good fight, and seek professional help when needed. That's why I'm here still.
Mum's time fighting is in it's final straight, but I know she'll keep fighting till the finish line.
It would be nice if all these things and their treatments didn't lead to more things and more treatments too
Wellcome to steemit,I live in Liverpool UK and this is only my second week. Great idea to do a new introducemyself, my first one wasn't up to much and it did seem to lack any important information and a photo. I think my introducemyself needs updating,look forward to hearing from you.
Thanks for the welcome. Yeah, I found out about the picture-or-you-might-be-a-bot sort of rule over a week into steemit when I was exploring the platform. It might help you connect with a lot of people was what I've read (or at least one of the reasons). Do come to PAL or #quiet-room. I've put the link. It might help you learn the ropes faster if not give you new friends. I hope to see you there :)
Welcome here @Unspeakableme! Nice post, i will follow your account, please follow me at @khunfarang
Thanks for the welcome but dude, seriously, the follow-to-follow won't get you very far. You need people who actually like your stuff.
This post has received a sweet gift of Dank Amps in the flavor of 25.00 % upvote from @lovejuice thanks to: @unspeakableme. Vote for Aggroed!
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Just landed and came across you :) you write beautifully, I choose to follow you. Thanks for sharing about you. I promise my intro as well, when I learn how this works XD
My writing has a long way to go but thank you :) Sorry for the delayed reply - my health has kept me away. Welcome to steemit!
Thanks :) I do appreciate it
o.o bot?