Sorry it's hitting you so hard. :( Feel better!
@cryptounicorn420 has daily experience with this. Maybe you two can share your experiences.
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Sorry it's hitting you so hard. :( Feel better!
@cryptounicorn420 has daily experience with this. Maybe you two can share your experiences.
Thanks! Dysautonomia is so weird, it's a whole expectrum. I'm usually in the easy side, but some days it's awful, especially when cooking, bc I have to stand for a long time.
I don't know many people with it, besides my dad and sister. @cryptounicorn420 how is it for you?
Cooking can be a trigger two fold. The extra heat and being upright. Maybe look into a stool or chair you can sit in while doing most of the work (if you can tolerate sitting) Shower chairs do wonders too(in general not in the kitchen lol).
I fainted several times as a kid, but the one that led to a diagnosis was at 15yo, and I was cooking. It was bad, but kinda funny, idk why I took the time to get the food out of the pan and turn of the kitchen instead of getting down immediately 😅 I hit my head so bad the doctor sent me to neuro. But luckily that doctor sent me then to a cardiologist that actually knew how to diagnose it.
It was really hard to manage before it. I was getting worried because the other doctors just asked for blood work and that always came out perfect, so it had to be something more complicated.
The dysautonomia is complicated, I think I'm lucky for not having a severe version, but I've noticed it's easier to trigger as I get older
Solidarity.it's hell for me all the time i have severe POTS, i can't be upright more than a few minutes without near syncope or actually passing out. Not just standing I can't really sit upright for any length of time either.
That sounds complicated to adapt to. Mine is usually manageable, but there have been a few times triggered by me being sick or by a medicine where it doesn't even allow me to get down, lights go off out of the sudden.