I've been through hell and back to be here and you know what I have learned....
Acceptance is key, love the skin your in!
I'll live my entire life with an ostomy bag but without it I'd be in a box with no life to live at all.
I chose life in spite of the challenges thrown at me.
It still amazes me how many people tell me that they could never live with a bag...
I think it's a symbol of courage and strength and you would be surprised what you can live with when there is no other choice.
Stay positive and thanks for reading. x
Power Up and Steem ON!
Want some inspiration, a hint or a maybe a laugh, I'm pretty funny I have been told. CHECK out these posts, all brought to you by @insideoutlet!
Khao San Road - Bangkok
#9 What is it? First to guess right wins! #walkwithme Tranquility in Nature - Creek Walk 36 hour LA Adventure – The Hollywood Sign Debacle
My hubby @shai-hulud is also a great steemian worth a follow, check out some of his below:
Steemit Week 1: Who Are You Don't get hooked by a Phishing scam. Actual steps you can take to protect yourself. Steemit Day One #2: Why lock an Empty House Welcome to Steemit. Day one: Get ready for the learning curve.
What to know more about @shai-hulud and I Check out these posts:
Butt naked with 2500 other cruise line passengers! Featured in @qurator & @asapers
Love isn’t always shit free. Featured in @thesteemengine and #themagnificentseven
How I got flipped Inside Out... For REAL! Featured in @thesteemengine
Our Adoption Adventure Written by @shai-hulud, my amazeballs hubby
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Accepting your life and loving yourself are key. Only after I embraced my illness, I was able to get well and learn how to deal with the gazillion of symptoms. You are amazing the way you are!
Yay to overcoming our illnesses even if we can't sure them! It really is about learning to live with the new you, I have some limits but nothing that stops me from loving life and I can do almost anything just need some more forethought before jumping in. You are pretty awesome too! x
So many positive messages here, my words can't add anything really. But I do want to endorse your openness. Most of us are inclined to hide what might seem to be a flaw to others. That just makes it hard to take a necessary step. This is true for a colostomy, or any illness. It's amazing how people deal with issues in secret, in isolation, because of the fear of stigma. Kudos for owning yourself, your body, your destiny. Good for you. Good for all us. We come in many sizes, in many circumstances. Embrace that and live life to the fullest.
Thanks @agmoore, that is really nice of you to say, I think that bringing things out of the shadows is the best way to break the stigma associated with it. Many live in fear that someone will find out about it and in all honesty, I used to be one of them, I remember when my hubby told his friends I was so angry but now I talk openly about it and he has helped me do that.
Your husband sounds like a rock. A nice soft one :)
haha he is pretty awesome, and how soft depends on how often he goes to the gym lol...
You are awesome @insideoutlet!! A true inspiration to us all!! ❤❤❤ Thank you for sharing this with us!
Thanks @monchhichi23, I appreciate the kinds words :)
Still up there with the best advice to ever give, Just love yourself.
So true, it's very hard sometimes but life is just so so much easier when you can. Thanks for stopping by @jusipassetti. You know in my head when I see your name I think its Julie, I'm not sure if you told me what it really was or complete one of those name challenges but keen to know what your real first name is so I can correct in my head. :)
Hahaha shame let me help correct your head, my first name is Justine. Jusi was the nickname my mom gave me. She was obsessed with the series The Thornbirds and that's where she got my name and subsequent nickname from :)
Hi Justine, nice to meet you, that does make much more sense when I look at your steemit name now. My mum's name is Julie, so I think it's just a go to in my head. Thanks for clearing that up :) My mum was obsessed with The Waltons, that's where my name came from, it's Erin. Very Irish given I am half Aussie, half British.
Good for you @insideoutlet. 💜
I couldn't agree more. This is true for everything really. Fighting with reality is such a waste of energy and gets us nowhere. 😊
Don't get me wrong I fought it for over two years and had 12 surgeries, it wasn't until I met @shai-hulud and got fed up with having no life due to being in and out of hospital so much that we made the choice together and have been much healthier and stronger for it since. :)
That sounds the perfect way to do it to me @insideoutlet. You gave it every chance to work out differently and then made the choice when the time was right. 😍
@gillianpearce Exactly, I don't think I could have done it any earlier or without my loving husband at my side, I was lucky to find him and that he loved me damaged and all, he made me whole again. ❤️
Lovely story. I'm very happy for you both @insideoutlet. ❤️
You said it sista!! I couldn't agree with you more :)
Thanks @lynncoyle1, from one amazeballs human to another xxxx
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100% agree with you here. People that are healthy and have always been healthy don't know the process that we have been through to have to be at the point of having to live with a bag.
But its true, without my bag I'd be in the ground, so its a small price to pay.
I wouldn't wish it on my worse enemy the things I had to endure but it kills me when I visit potential ostomates in hospitals and they are prepared to sign the 'Do not resuscitate' form rather than live life with a bag, one young lady signed it and was prepared to die even after she saw that my life was worth living, it's wasn't until the moment arrived that she changed her mind and then spent weeks in ICU as she was so ill going into the surgery, if she had agreed a week earlier she could have saved herself that pain but everyone has to go through there own process, she still to this day hates the bag but she is alive and will see her 30th birthday with I think is good. She now just needs to find a way to accept herself but sadly many do not and spend all their time and energy hating the life they have been given.
I love that there are other ostomates on Steemit too, not many but a few of us. However in saying that there could be more but none as open. I have gina tag me if anyone uses the word ostomy but mainly its the shit posts advertising the bag markets that comes through.
oh thats a good idea using Gina for that.
People may be like me, I'm quite open about my bag, but I never seek support, never did support groups or any of that. They may not like talking about it at all.
I think my opinion of life with a stoma might be a lot different if I were single though, as that would be a hell of a thing to have to mention to girls on a date. The rejection would cause some serious mental problems. Even if the rejections were related to the stoma, you would think that was the secret meaning behind it.
Very very true, I was dumped the night before my surgery, he actually wished me dead on the operating table, charming bloke and the best thing he ever did for me, but being single was so so hard as I truly believed that no one would or could love me like this. I was very wrong but your head will go where it does and I was super lucky to meet a man that had zero issues with my illness or the bag, just loved me for me. :)
Thats bloody horrible to wish someone dead on the operating table, what an asshole.
Got it in one, funny thing, he contacted me on FB a few years later and told me it was only cause he loved me so much that he didn't want anyone else to have me... WTF... Some people, I can tell you I wasn't so kind before I blocked him.
Realizing that love is key is showing love to others is a key to healing...in my experience. So refreshing to read you are on this path in life. The pain is still real. But it is amazing to read your story of conquering the hate.
I think that self-love is part of acceptance so I agree with your sentiment above too :) I didn't like myself for may years, even cried in front of the mirror when I had to get out of my clothes but now I advocate for people with similar conditions and I find that helping others helps me too.
I've read this comment a few times over the past few days and it makes me smile every time. Lots of Sage wisdom here. Thank you for taking the time to respond with it.
Awww shucks, thanks @lexikon082. I appreciate your kind words. See you round the blockchain.
Watch how many change their view when it no longer becomes a choice . I can tell you that I do not want a bag . I am avoiding it at all cost , almost . If the time comes and I hope not , there is no choice to be made .
Life is so much more than a bag attached to one's stomach as you have shown . Except that repel down a 4 ft hill , mound . LOL WTG !!!!
I spent a long time fighting it and it wasn't until I met @shai-hulud and got fed up with having no life due to being in and out of the hospital that we made the choice together to go permanent instead of getting another j-pouch, which could have meant not living with a bag, but I was in so much pain with the last one that in the end the choice was easy and I have been much healthier and stronger since. :)
I am glad it worked out . I understand the pain involved and to be free of that is in itself a blessing . If I may ask what was your symptoms , ulcerative colitis or Crohns and was it just in the Colon
I was diagnosed with UC first and then Crohns, but have had no issues since going permenant, I still have a fistula but that gives me little grief now aswell.
Thanks for the infomation its important . Do you still have problems with inflammation or is that under control
I guess I should explain . I have UC and Crohns and its not limited to the colon . So its a little more then curiosity
UC would be limited to the colon only, it can't go anywhere else, Crohn's can affect the entire digestive tract. I gathered that you may have had one of them, I have no issues with inflammation now but only my large intestine, rectum and a very small portion of the small bowel was affected. so they just removed it all. We tried saving the rectum for a j-pouch, but had nothing but issues so out it went too...
the Crohn's entire digestive tract. and UC in the colon . so both its always one day at a time
Good for you! I like your positive attitude. @ironshield
Thanks for the kind words @ironshield, I like your Steemit name, what made you choose it?
Thank you for asking! I'm surprised how many people don't ask about my Steemit name! LOL. I used to write fantasy stories and the main character's last name was ironshield. It became my online persona for years. @ironshield
Very cool, thanks for getting back to me. :) I love fantasy and sci-fi stories, its pretty much all we read, listen too (audio books) and watch, total Stargate geeks my hubby and I.
Love skin..live life fully....👍
Here here!!! Thanks for stopping by @steemflow.
Great work friend, God bless you always. You're the best...
Welcome to #thealliance! I just saw you moved into the playground :) I have also sent your post to curie curators for review cause it was pretty awesome!
This is a very good motivation. May be a lesson for others.
@alhidayat I hope so as we spend too long on this earth not to love ourselves. Thanks for stopping by.
You are welcome.
thank you for supporting us
@aulia7629 always welcome :)
I am black and beautiful And that makes me an African. I love my black skin because it's a nice one.
Thanks for sharing this motivation
Love Love Love that skin! I am as white as they come and don't tan too well, as you can see by my tummy in this photo lol, I think it may be the ginger hair and freckles that have doomed me to staying pasty for life lol. Thanks heaps for stopping by :)
Welcome.
I love your attitude and your appreciation of life. Thank you for sharing your positivity with us and for reminding us of this importance...to love the skin we are in~
Many blessings to you. 😊
Thanks for the comment @crosheille, it was an important lesson for me to learn and I am glad it didn't take a life time to learn it. :)
Absolutely!! 😉
Without loving ourselves, how can we love anyone else? Yeah, love the skin you are in, love love and love. 💚💚💚
So very true and something I had to learn, lucky I had found an accepting man that helped me realise it before it was too late. I had some pretty dark thoughts in the midst of it all.
You're so inspiring and very brave. Thanks for sharing this :)
Thanks for stopping by and checking it out. I haven't seen you around for a while but I haven't been as active as normal with picking up our son. I hope we can get back into being more active soon.
faith in creation; and understanding that is key.
Like the big bang? Not sure that understanding that will help me love myself, but each to their own.
maybe the porno,,lol just kidding....
i think i may have been drinking,,,or sleep posting..
things like that pop in my head all the time usually very helpful, but im not sure about this one...hope someone gets something out of it. "manifestation"
Haha, well that comment flipped my originally thoughts on where you were going lol...
Love your spirit and your message, @insideoutlet You help others with strength and positive outlook.
I hope too, thanks for stopping by and taking the time to comment @youhavewings, always love seeing your comments :)
Me too you :)
So so true. Acceptance ♥️💛
Thanks for stopping by :)
Thanks for sharing your story with us! You always make me smile whenever I get to visit your posts. :)
You don't have to be in perfect health or perfect body just to be able to enjoy the good things in life! :)
To true, life is here to be enjoyed, nothing is perfect but it's what we make of it. Thanks for stopping by. :)
:) Always a pleasure to read your posts. ^^
This is really inspiring. Acceptance is key, the first step to facing love problems and living a better life is to accept ones weakness.
You are amazing ma'am ♥
Thank you for your kind words @stevenson7 and for stopping by my blog. I always appreciate new people reading my stuff. Have a great week.
thank you for sharing and being so honest and open! defeat the stigma!
@corinneiskorean Thank you, it too me a long time accept myself but life has been all the better for it :)